6 replies to this topic

[Theresar360]

Hi everyone, Just an update on my granddaughter Victoria. She is on her way home. The hospital has set a tentative release date of March 26. My daughter and her husband are being trained in all aspects of her care to take her home. My daughter is an LPN which helps. We are so excited for this to happen and I am sure the baby is too. I think she is sick of looking at that hospital room. She is still on the vent. She has no movement from the neck down. We can only hope that over time she maybe able to come off the vent. Only God knows what will happen. She is such a happy baby after all that has happened to her she still has the most beautiful smile! I will keep you posted and thank you all for your thoughts and prayers through our ordeal. Theresa

[Joed]

Fantastic news! I'm sure everyone is counting down the days.

I'll be watching for any future posts to see how Victoria is doing.

[Theresar360]

Joed, on Mar 1 2008, 02:28 PM, said:

Fantastic news! I'm sure everyone is counting down the days.

I'll be watching for any future posts to see how Victoria is doing.

We sure are! I finally got to hold Victoria today the first time since Dec. 4th the day before the accident. She just laid there and grinned from ear to ear. When I asked her if she wanted to go back to bed she shook her head no and kept smiling. We all laughed it was really funny to see her expression. I am so much happier these days it is amazing how much this child has adapted to her injuries and just seeing that has made my heart alot happier. Thanks for writing and I will post again so. Theresa

[kewlcatkez]

Theresar360, on Mar 2 2008, 07:23 AM, said:

Joed, on Mar 1 2008, 02:28 PM, said:

Fantastic news! I'm sure everyone is counting down the days.

I'll be watching for any future posts to see how Victoria is doing.

We sure are! I finally got to hold Victoria today the first time since Dec. 4th the day before the accident. She just laid there and grinned from ear to ear. When I asked her if she wanted to go back to bed she shook her head no and kept smiling. We all laughed it was really funny to see her expression. I am so much happier these days it is amazing how much this child has adapted to her injuries and just seeing that has made my heart alot happier. Thanks for writing and I will post again so. Theresa

Hi TheresaR,

that is fabulous news! I have been wondering how things were going with the plans for home. Victoria once again sounds like she is a little joy It is fabulous to see/'hear' the difference in your outlook from how understandably you once were.
It will be a stressful time and one fraught with worry, but also it will be wonderful to have Victoria in her own home, surrounded by her own family and like you say not in the same hospital room!
You may find that she makes even more progress in her own home environment Please keep us informed.

I have added a few links for your perusal, it may be that you have some already, but I wanted to post them anyway:

Coming soon~ parents and carers.com


National Dissemination Center for Children with Disabilities USA


The Disabled Childrens Relief Fund

Take care and please do let us know, when you can, how things are going, Its absolutely fantastic news!

Take care,

K

[Theresar360]

kewlcatkez, on Mar 2 2008, 01:50 AM, said:

Theresar360, on Mar 2 2008, 07:23 AM, said:

Joed, on Mar 1 2008, 02:28 PM, said:

Fantastic news! I'm sure everyone is counting down the days.

I'll be watching for any future posts to see how Victoria is doing.

We sure are! I finally got to hold Victoria today the first time since Dec. 4th the day before the accident. She just laid there and grinned from ear to ear. When I asked her if she wanted to go back to bed she shook her head no and kept smiling. We all laughed it was really funny to see her expression. I am so much happier these days it is amazing how much this child has adapted to her injuries and just seeing that has made my heart alot happier. Thanks for writing and I will post again so. Theresa

Hi TheresaR,

that is fabulous news! I have been wondering how things were going with the plans for home. Victoria once again sounds like she is a little joy It is fabulous to see/'hear' the difference in your outlook from how understandably you once were.
It will be a stressful time and one fraught with worry, but also it will be wonderful to have Victoria in her own home, surrounded by her own family and like you say not in the same hospital room!
You may find that she makes even more progress in her own home environment Please keep us informed.

I have added a few links for your perusal, it may be that you have some already, but I wanted to post them anyway:

Coming soon~ parents and carers.com


National Dissemination Center for Children with Disabilities USA


The Disabled Childrens Relief Fund

Take care and please do let us know, when you can, how things are going, Its absolutely fantastic news!

Take care,

K

Hi K, We are so excited! It is going to be scary but I am sure all of us will do okay. It will be alot of trial and error. Yesterday as I was holding her, the Y tube I am not sure that is its name, it is clear and brings the air up to the trach, came off and both of my hands where busy holding her. The alarm went off and the nurse came running in and reconnected it. I paniced and thought OMG what would I have done if I was alone. These are the things that will be frightening to me. But I guess we will figure it out as time goes on and each individual thing happens.
I will check out sites you provided. All the info you can pass this way is greatly appreciated. Take care K and it was great hearing from you again. Theresa

[rollingpix]

I'm very happy for your family. One big blessing is that we are in an era when the awareness and technology regarding spinal cord injury is very encouraging. I hope all the best for you and your family.

[Theresar360]

rollingpix, on Mar 5 2008, 11:10 AM, said:

I'm very happy for your family. One big blessing is that we are in an era when the awareness and technology regarding spinal cord injury is very encouraging. I hope all the best for you and your family.

Thank you for the encouraging words! I think about this on a daily basis, what the future holds for baby Victoria. Who knows what will happen? Maybe someday she maybe able to use her arms or even walk. There are many medical breakthroughs happening daily and maybe they will find one that will help her and all the other people in the same situation as her. The biggest saving grace that we have with her is that she is so young and has not experienced alot in her whole 21 months of life that she will not remember walking and having experienced the use of her arms, hands and legs. This is not to say that she won't miss using them as she sees others do so but she will think she has always been this way when she gets older. Of course she will know what happened to her as people will tell her but as far as memory we don't remember things that far back in our childhood. Thank you for your ecouraging message and best wishes to you also...Theresa