2 replies to this topic

[Emily C]

Hi all!!

I had a cerbral spinal fluid leak last week and was forced to lie flat for the whole time. The headaches were UNBEARABLE!!! I was just wondering if anyone else on this forum has experienced a leak or if it's unique to me due to my other conditions. If u did have one, how long did it take u to heal? Thanks...E

[jules]

Hi Emily

I had a CSF leak about 10 years ago, it was horrendous, I had awful headaches, felt sick and had to keep my head down. They decided mine was a spontaeous leak, but hopefully I'll never have one again.

Hope you feel better soon

Jules
x

[Emily C]

jules, on Mar 21 2008, 04:18 AM, said:

Hi Emily

I had a CSF leak about 10 years ago, it was horrendous, I had awful headaches, felt sick and had to keep my head down. They decided mine was a spontaeous leak, but hopefully I'll never have one again.

Hope you feel better soon

Jules
x

Thanks, Jules for the info, I'm doing better then I was, the headaches aren't as extreme. It just hurts now. I can deal with THISpain b/c I'm used to it...Did the docs ever know why you leaked spontaeously? So did I, I think it's my brain stem issuses and EDS. Take care!! Em