Jump to content


- - - - -

Texas - Care & Insurance Questions


  • Please log in to reply
4 replies to this topic

#1 Lovestor

Lovestor

    Newbie

  • Members
  • Pip
  • 7 posts
  • Country:Portland, Oregon
  • Spinal Injury Level / Relationship:C-5 & C-6 / Caregiver

Posted 01 April 2008 - 04:27 AM

Hello! My name is Evan. I've been stalking the boards for a few weeks now, already spoke to a few people in private. Great community :hug: I've already referred some friends here.

Anywho. I was born and raised in Austin, Texas. Lived there until I was 21 years old, at which point I met Crystal(my girlfriend, a quad), who lives in Portland, Oregon. After getting to know one another online, I eventually saved up 2 weeks vacation from my job to come up here and visit her. I KNEW it was something that I had to pursue, no matter how difficult. Unfortunately, with her situation, there was no way I could ask her to move down to live with me. Clearly I had to make the arduous journey to Oregon. Leaving my home was the hardest thing I think I've ever done. Thankfully, I've always had excessive amounts of willpower and I made the move up to Portland.

We've been together now for 2 years. It has been an amazing 2 years. No matter what happens at this point, I'm happy that I made the decision that I did. I don't believe that anything would allow regret to cast it's ugly shadow over this. I am quite sure now that both of us are at a place in our relationship that we are positive that we are in for the long haul. Not that I ever questioned the commitment. I suppose I just see it as more realistic and well justified at this point.

Now that I feel that our relationship is well established. I really want to let her become a part of my family. I have an extremely large network of close friends and family back at home. Here, we have literally nothing. No friends or family worth mentioning. Crystal's inability to thermo-regulate means that the cold weather inhibits our ability to even leave the apartment for the vast majority of the year. It just isn't the life that we want for our family. Both of us want very dearly to be able to move to Texas in the somewhat proximate future.

Unfortunately, the research I have done recently has made the situation seem quite grim. I have found it very difficult to get straight answers out of anybody, and a few of the people I spoke to were even offensive. Right now, I feel as if Texas has a "no poor cripples" sign hanging above it.

We had planned on moving into the house I grew up in back at home, which is about 75% paid off and that I own 50% of. From everything that I was told. There is no way that the state would pay for a full-time attendant to come take care of Crystal. I am not only perfectly willing, but happy to take care of Crystal when I can. But if I'm living in Texas making mortgage payments on a house, I'm going to have to work. However, it is COMPLETELY unacceptable to leave her sitting at home alone with only 2-3 short visits in a day. If I am at work or at school, I need to know that Crystal has someone she can get immediate assistance from. Not to mention the fact that I can't get any information about what kind of insurance we would have or if they would take her SSI away because she was living in a house. They just tell me that we have to move there FIRST, to know anything. This just seems indescribably ridiculous to me.... And considering I just FINALLY won a 2 year battle to get her insurance to pay for catheters and enemas up here; the thought of having our insurance reset is painful to say the least. They have also made it completely apparent that we're going to have to lie to them about the fact that we are involved with one another.

The list goes on. But I think I've kind of made my point. I guess to sum it all up. I do have a lot of friends and family who could help us out(not wealthy people, but they will help). I have a lot of personal assets and a good bit of money saved up. Yet, I feel like if we just make the move down there, we may find ourselves in a losing war of attrition and I will lose my house and be forced to move back here with nothing to show for it. Any information you Texans, or more specifically you Austinites could give would be soooo appreciated.

My AIM name is DOOMXEEN and my MSN/E-mail is Doomxeen@hotmail.com
Feel free to talk to me about anything. I LOVE meeting new people and chatting.

-Evan

#2 kdenon01

kdenon01

    Member

  • Members
  • PipPip
  • 400 posts
  • Gender:Female
  • Country:Michigan
  • Spinal Injury Level / Relationship:Wife/Caregiver of c5-c6

Posted 02 April 2008 - 07:30 PM

Sorry Evan. I don't know where all the Texans are hiding!

#3 Lovestor

Lovestor

    Newbie

  • Members
  • Pip
  • 7 posts
  • Country:Portland, Oregon
  • Spinal Injury Level / Relationship:C-5 & C-6 / Caregiver

Posted 03 April 2008 - 12:06 AM

It's ok, thanks for the excuse to bump the topic though! heehee

#4 killakitty

killakitty

    Newbie

  • Members
  • Pip
  • 20 posts
  • Gender:Female
  • Country:Fort Worth Texas
  • Spinal Injury Level / Relationship:wife of c-5 quad

Posted 30 June 2008 - 08:42 PM

Hi Evan-
I currently live in Ft.Worth Tx. I moved here from Ohio. I was in a situation like yourself. My fiance is an c-5 quadriplegic. I dont regret moving here. It feels so good for me to be in love and happy!! If Crystal has a problem thermo regulating have you looked at hyperthermia? I am sorry I can not help you with insurance info and such. He was in the Marine Corp so most is covered by that. I will have him read over this tonight or tomorrow and see if he knows anything. I wish you all the best of luck! If I can find anything out I will let you know.
Dont judge a book by its cover.... You may be putting down a best seller!!

#5 Texaswheelz

Texaswheelz

    Member

  • Members
  • PipPip
  • 982 posts
  • Gender:Male
  • Country:Big D
  • Spinal Injury Level / Relationship:T6/7 Complete 19 years

Posted 01 July 2008 - 09:55 PM

Sorry i didn't see this post when it was posted back in March. I've lived in Texas since 2003, so I'll try to answer some of the questions. I don't know what type of insurance she currently have, but I have medicare, which is the same nationally. However if she is on Medicaid it would be different from state to state. With Medicare it doesn't matter where I live, they've never asked who I lived with or what type of home I lived in, whether it was alone, paid for by me, owned by me, owned by some one else, paid for by some one else...etc. They've never asked me my living arraignments, so if she were to move to Texas and be on medicare I don't know why they would ask her. Why they would care that she has a boyfriend or that the two of you are involved is beyond me? They don't take away money from people for dating.

I'm also married, it doesn't effect how much I get on my disability check. I was on Texas Medicaid when I first moved to Texas and it also wasn't affected by my living arraignments or marriage.

More info then that I can not give as I do not know. I don't need any one to check in on me or need an attendant, so I don't know what would or wouldn't be provided for that.

Texas is a great state IMO to live in and there are a ton of people that are disabled that live here. And again if she has medicare then it's a national thing so nothing would change, although due to the cost of living the amount of assistance she gets in the form of a check could be more or less depending one what the cost of living is where you are currently at.

Edited by Texaswheelz, 01 July 2008 - 10:01 PM.





1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users



This website is a way for those with spinal cord injuries to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.