5 replies to this topic

[freedomdan]

so after the accident could move her legs fine, all over the place thus was labeled an incomplete t12. now almost 2 months post sci injury legs are immobile. surgeries to fuse spine t-11 to l2, left swollen. but legs stopped moving after a burning pain for a second in part of legs to stomach, and then feeling stopped.
ideas?
is this an incomplete or has it changed?
advice?
now, the asia classification needs to be done to get a more solid viewpoint. but will it be labeled as Asia A -> complete because no feeling no motor and no sensory.
Doctors said wait till swelling goes down and it has started to only a week or two ago. ideas?
thanks.

[Motor]

freedomdan, on Apr 13 2008, 09:16 PM, said:

so after the accident could move her legs fine, all over the place thus was labeled an incomplete t12. now almost 2 months post sci injury legs are immobile. surgeries to fuse spine t-11 to l2, left swollen. but legs stopped moving after a burning pain for a second in part of legs to stomach, and then feeling stopped.
ideas?
is this an incomplete or has it changed?
advice?
now, the asia classification needs to be done to get a more solid viewpoint. but will it be labeled as Asia A -> complete because no feeling no motor and no sensory.
Doctors said wait till swelling goes down and it has started to only a week or two ago. ideas?
thanks.

When was the accident. It took me a month to move a toe. Was originally diagnosed as T-6 complete para. Now T-6 incomplete para. Been 3 1/2 years now and I stand and walk 30 feet..(not functional yet). It gets worse before it gets better. Need patients and hard work to get through a SCI. Look me up if you have any questions.

Motor

[wheeliebear75]

It's possible that the surgery itself caused some swelling. It doesn't take all that much swelling to interfere with the spinal cord's ability (it doesn't take a lot of swelling to temporarily cut off messages). The spinal column is a very narrow space. It may be that once the swelling of surgery is gone the feeling she had will return (though NOT a guarantee). Also surgery can help but sometimes it can cause just as much damage as they were trying to fix. There are no guarantees in medicine and the Dr.s can do a lot......but they're not God; he's the one who ultimately decides (In My Opinion).

[Kwag_Myers]

I know I didn't like to hear what I'm about to tell you, but it's true - two months is not very much time. I'm eight months post and they're telling me I have another four to ten months where motor and sensory function may return. Even at that, nothing is definite.

Edited by Kwag_Myers, 14 April 2008 - 10:22 AM.

[freedomdan]

thank you all. i know within 8 hours of injury steroids would have been good. but are they no use over 2months later to help reduce swelling, etc.?
what about 4-aminopyridine and coenzyme q-10, does anyone know about those two medicines?
can nsomeone describe the decrease in swelling process and how it was to get the feeling back in toes, legs? any exercises that your physical therapists or nurses recommended you to do upon retriveing feeling? and/or exercises to help feeling continue to grow throughout legs?
thanks.

[City Girl]

I am a T12 incomplete. Accident occurred September 2007. Currently 7 months post-injury. Fell 15 feet onto my back. Smashed T12 vertebrae and completely crushed the spinal cord upon impact. Have two rods and 12 screws in my back: a six vertebrae fusion T10-L2. Had terrible swelling for close to four months. 10 lbs of extra water weight. Feet were the size of footballs. Had no feeling. Had no motor function. They told me I'd never walk again. I told them to f*@k off.

I now have complete bowel and just recently bladder function. Sexual function back to normal again. I have been able to stand for several months now. I walked 130 meters with canes last week in physio. Have regained all my range of motion and I can do the yoga pose "The Cobra" again.

I read the book Train Your Mind Change Your Brain. I worked very hard EVERY DAY and visualized using a standing frame (min. 1 hour every day) and MOTOmed (min 1 hour every day) until I saw a flicker of motor function in my right quad about 9 weeks post injury. Did not qualify for out-patient at rehab so I found an extremely unconventional, private neuro-physiotherapist who has been working with me three times/week very aggressively since my discharge from rehab in January. I am divorcing my wheelchair at the end of the month. I also just got the ok to drive again.

Additionally, I hired a private massage therapist who began treating me five weeks post-injury for one hour, three times/week. Went down to one hour, two times/week four months post-injury and then one hour, one time/week at six months post-injury.

Spent 1-2 hours/day working on range of motion when I was in the hospital. Something one can do in one's hospital bed.

There are no guaranties but determination and attitude has paid off for me. Very hard to fight the 'never walk again' attitude that blanketed me at the rehab hospital.

FIGHT ON!
City Girl