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Regaining Bladder Control After Cauda Equina Injury?


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20 replies to this topic

#1 bensinjury

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Posted 15 April 2008 - 02:40 AM

Can anyone tell me if they have regained any type of bladder function? My son is 18 months out from injury date and has regained his ability to walk, and regained control of his bowel...but still no bladder, anyone know if we have any chance for this to regain control? Has anyone regained this function this late after the initial injury date?

#2 City Girl

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Posted 15 April 2008 - 03:43 AM

Can anyone tell me if they have regained any type of bladder function? My son is 18 months out from injury date and has regained his ability to walk, and regained control of his bowel...but still no bladder, anyone know if we have any chance for this to regain control? Has anyone regained this function this late after the initial injury date?


I'm 7 months post-injury and just completely emptied my bladder for the very first time last week. I have only been able to do it three other times...out of about 30. I keep trying every day, however. When my muscle function started to flicker, it wasn't consistent either. The pelvic floor is one of the last muscles to return. I only started walking a month ago and it's not well enough to completely divorce my wheelchair yet, but I keep trying. It takes a lot of energy...to do everything now. Sometimes I'm just too tired, but when I'm not, I try. I don't want my body to forget.

Does he have sensation? I have known when my bladder is full for a long time now.

City Girl
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~ City Girl ~
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#3 RaginTurtleHead

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Posted 15 April 2008 - 04:28 AM

2 and 1/2 years post.... still no bladder or bowel control. I can tell when my bladder is full most of the time but not in the normal sense, I have kinda had to learn new ways of detecting it lol
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#4 Kwag_Myers

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Posted 15 April 2008 - 10:01 PM

I've been debating whether to reply to this all day. You see, I've just been diagnosed with Cauda Equina Syndrome (CES). It has to do with the lower part of the spinal cord and nerve roots. Since your son is an L2, I thought it might be worth your looking into.

Here’s what I’ve learned so far: The motor/sensory function returns (on average) between 12 and 18 months post injury. (The usual disclaimer here: everyone’s different – no one can predict, blah, blah, blah). Any function that hasn’t returned by then probably won’t. (Here’s my own disclaimer: I believe in, and have often been the beneficiary of, Divine intervention – so “probably” isn’t “never”. That’s just what the doctor’s say, and they’re just practicing medicine).

My PT says that it’s more probable for the nerve root to heal than the nerve. I’m not really sure I understand that, but that’s the only optimistic piece of news I can offer.

I hope I haven’t bummed you out. But my experience these last eight months has been to hope for the best and learn to deal with where you’re at. If it comes back, have a party!

btw, I’m T12 incomplete at eight months post. I’m very limited as to how much I can walk and my “private sector” hasn’t returned (yet).
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#5 katiekate

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Posted 07 June 2011 - 10:46 PM

My husband is leaking!

He has a t-9 complete injury, but it seems more incomplete. He was told he would regain nothing below the belly button, how it started - but has sensation through his trunk almost completely and some sensation all the way down. He is fine w the bowel program, and pees when he poops. He can force pee out when it starts - but recently it is getting out of hand! He does the self cath fine, but at night it just comes out. Is it time for diapers or is there a chance he is getting some function back?

Injury almost 2 months ago.

Thank you for any responses, we are newbies !!! People with experience is the best resource!

#6 Tetracyclone

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Posted 07 June 2011 - 11:52 PM

At 2 months, yes, he may well get more return. Meanwhile, mop it up!
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#7 MTB John

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Posted 08 June 2011 - 02:37 AM

Hopefully it is a sign of good things to come but leaking is a symptom of a urinary tract infection (UTI) so it might pay to get checked by your GP just in case...
Out of the gloom a voice said unto me, "Smile and be happy, things could be worse." So I smiled and was happy and behold things did get worse.

#8 Millard

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Posted 09 June 2011 - 12:50 PM

Can anyone tell me if they have regained any type of bladder function? My son is 18 months out from injury date and has regained his ability to walk, and regained control of his bowel...but still no bladder, anyone know if we have any chance for this to regain control? Has anyone regained this function this late after the initial injury date?



Hello,

There is always a chance to regain feeling, use and control of body parts and functions. I regained by bowels and bladder. For about 37 years I walked with Loftstrand crutches. After multiple bone breaking, my orthopaedic surgeon convinced me to get rig of the crutches and use a power chair. It was great advice I took! Be patient. There will be more return and Ben will have to adjust to it.

Good luck.

Millard
"Life's tough. It's even tougher if you're stupid!" - John Wayne

#9 maxgorkiy

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Posted 03 December 2015 - 04:55 PM

Stumbled on this thread searching Google and wanted to contribute for others doing the same. I am L1 incomplete who suffers from CES. I was able to walk with a walker soon after the injurty and was walking normalling within 2 months. However, the bowel and bladder are still problematic. I was experiencing urinary retention with only a catheter to help me out. After 4 months I regained some contol of my detrusor muscle but not the ability to relax my urinary sphincters. So if I want to try to pee, I need to constrict my pelvic floor muscles which builds enough pressure for the urine to pass through the urinary sphincters. I read somewhere that above 50 mm H2O of pressure the urinary sphicnters release. So I assume I am building up more pressure with my detrusor muscle to power the urine through.

 

Right now at 6 months I feel I reached a plateau. I can get by without a catheter when I travel, but when I am at home, especially in the mornings, I have to self-cath.

 

Last thing. I know that a lot of people read but do not post on this forum. I also know that most of the "lighter" cases tend to just lurk without contributing. I feel like I am very lucky to be the "lighter" case when it comes to SCI and want to share my recovery timeline. I can pass for a nomral person after 6 months. Let's see what happens in the next months to come. I am not losing hope.


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#10 KungFuBride

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Posted 03 December 2015 - 05:10 PM

Stumbled on this thread searching Google and wanted to contribute for others doing the same. I am L1 incomplete who suffers from CES. I was able to walk with a walker soon after the injurty and was walking normalling within 2 months. However, the bowel and bladder are still problematic. I was experiencing urinary retention with only a catheter to help me out. After 4 months I regained some contol of my detrusor muscle but not the ability to relax my urinary sphincters. So if I want to try to pee, I need to constrict my pelvic floor muscles which builds enough pressure for the urine to pass through the urinary sphincters. I read somewhere that above 50 mm H2O of pressure the urinary sphicnters release. So I assume I am building up more pressure with my detrusor muscle to power the urine through.

 

Right now at 6 months I feel I reached a plateau. I can get by without a catheter when I travel, but when I am at home, especially in the mornings, I have to self-cath.

 

Last thing. I know that a lot of people read but do not post on this forum. I also know that most of the "lighter" cases tend to just lurk without contributing. I feel like I am very lucky to be the "lighter" case when it comes to SCI and want to share my recovery timeline. I can pass for a nomral person after 6 months. Let's see what happens in the next months to come. I am not losing hope.

 

Hey, welcome!  It's six months for me, too! I'm also walking and the cane is optional for short walks, like around the house or into the store for two things.

 

I can "push" if I have to go very badly, but I don't really empty all the way and have to cath.


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#11 goisgo

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Posted 04 December 2015 - 01:33 PM

Stumbled on this thread searching Google and wanted to contribute for others doing the same. I am L1 incomplete who suffers from CES. I was able to walk with a walker soon after the injurty and was walking normalling within 2 months. However, the bowel and bladder are still problematic. I was experiencing urinary retention with only a catheter to help me out. After 4 months I regained some contol of my detrusor muscle but not the ability to relax my urinary sphincters. So if I want to try to pee, I need to constrict my pelvic floor muscles which builds enough pressure for the urine to pass through the urinary sphincters. I read somewhere that above 50 mm H2O of pressure the urinary sphicnters release. So I assume I am building up more pressure with my detrusor muscle to power the urine through.

 

Right now at 6 months I feel I reached a plateau. I can get by without a catheter when I travel, but when I am at home, especially in the mornings, I have to self-cath.

 

Last thing. I know that a lot of people read but do not post on this forum. I also know that most of the "lighter" cases tend to just lurk without contributing. I feel like I am very lucky to be the "lighter" case when it comes to SCI and want to share my recovery timeline. I can pass for a nomral person after 6 months. Let's see what happens in the next months to come. I am not losing hope.

 

Maxgorkiy, but they told me: Too much pressure is bad for the kidneys?

The only technique I use is time and relaxing and tapping. And the condom urinal with legbag.

Its better now after 3 years. Wish you all the best ! Never give up hope, everything is possible.



#12 Tetracyclone

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Posted 04 December 2015 - 03:23 PM

Stumbled on this thread searching Google and wanted to contribute for others doing the same. I am L1 incomplete who suffers from CES. I was able to walk with a walker soon after the injurty and was walking normalling within 2 months. However, the bowel and bladder are still problematic. I was experiencing urinary retention with only a catheter to help me out. After 4 months I regained some contol of my detrusor muscle but not the ability to relax my urinary sphincters. So if I want to try to pee, I need to constrict my pelvic floor muscles which builds enough pressure for the urine to pass through the urinary sphincters. I read somewhere that above 50 mm H2O of pressure the urinary sphicnters release. So I assume I am building up more pressure with my detrusor muscle to power the urine through.

 

Right now at 6 months I feel I reached a plateau. I can get by without a catheter when I travel, but when I am at home, especially in the mornings, I have to self-cath.

 

Last thing. I know that a lot of people read but do not post on this forum. I also know that most of the "lighter" cases tend to just lurk without contributing. I feel like I am very lucky to be the "lighter" case when it comes to SCI and want to share my recovery timeline. I can pass for a nomral person after 6 months. Let's see what happens in the next months to come. I am not losing hope.

Have you tried tapping over the pelvic bone/bladder to relax the sphincter?  It takes patience because you have to be gentle and relaxed, but it works for many.



#13 Broken1

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Posted 05 December 2015 - 01:54 PM

I'm a T 11 complete hoping to be incomplete or better.  That's a gimme.  :)  I am a little over 8 months post injury.  I still have no feeling or urinary or bowel control.  I have tried to train them to go in the mornings but instead they go at 6:30 p.m.  Of course the urine just flows when it wants so I wear a leg bag when I'm up, and a large bag hanging off my chair at night.  I was told that anytime there could be a change and to just keep looking for it.  Every SCI is different so anything is possible.  Will something return?  You'll just have to wait and see.  Best of luck. :bye:



#14 maxgorkiy

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Posted 09 December 2015 - 03:35 PM

 

Stumbled on this thread searching Google and wanted to contribute for others doing the same. I am L1 incomplete who suffers from CES. I was able to walk with a walker soon after the injurty and was walking normalling within 2 months. However, the bowel and bladder are still problematic. I was experiencing urinary retention with only a catheter to help me out. After 4 months I regained some contol of my detrusor muscle but not the ability to relax my urinary sphincters. So if I want to try to pee, I need to constrict my pelvic floor muscles which builds enough pressure for the urine to pass through the urinary sphincters. I read somewhere that above 50 mm H2O of pressure the urinary sphicnters release. So I assume I am building up more pressure with my detrusor muscle to power the urine through.

 

Right now at 6 months I feel I reached a plateau. I can get by without a catheter when I travel, but when I am at home, especially in the mornings, I have to self-cath.

 

Last thing. I know that a lot of people read but do not post on this forum. I also know that most of the "lighter" cases tend to just lurk without contributing. I feel like I am very lucky to be the "lighter" case when it comes to SCI and want to share my recovery timeline. I can pass for a nomral person after 6 months. Let's see what happens in the next months to come. I am not losing hope.

 

Maxgorkiy, but they told me: Too much pressure is bad for the kidneys?

The only technique I use is time and relaxing and tapping. And the condom urinal with legbag.

Its better now after 3 years. Wish you all the best ! Never give up hope, everything is possible.

 

 

If I drink too much and don't go, I will leak out of my urethra. The fact that my "release" valve is my urethra and not my kidney ducts is a good indication that nothing flows up to the kidneys. That's what my urologist said. Everyone's physilogy is different, but chances are if you have accidents (despite having urinary retention), your urine DOES NOT go up the kidney ducts. What also helps for me is bending over on the toilet when I try to pee. Oh yes, and I lose stool when I push.... So I have to go potty like a girl. No big deal. Probably more sanitary that way :-)


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#15 Bigave

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Posted 06 July 2016 - 02:50 AM

When I had the surgery I woke up with no function. Was told I had to use a catheter. I found a way to urinate using my abs. I still had no feeling so the only way I knew I was going was by sistening for the toilet water being disturbed. I did this for a few months and then voila I regained about 90% function. I use my abs for one last push at the end. I am four years out from surgery.

#16 Vintage

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Posted 08 July 2016 - 04:47 PM

When I feel a small spasm 'down there' and urine starts to come out, I take advantage of the little stream that has started on its own by tightening my abs (whatever I can) and leaning a little forward. I wear a diaper. I gauge my success by the fact that I no longer have nephritis.

#17 Bigave

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Posted 12 July 2016 - 06:29 PM

Vintage,
When you say small spasms down there, it reminds me of my first few months. (L5 S1). I would feel a spasm as well and would only know I was going by listening for toilet water. I had the spasm/urge to go,but couldn't feel the Urine coming out. I found it very awkward. it eventually got better over the next three months

#18 Vintage

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Posted 12 July 2016 - 07:16 PM

Mine has stayed the same. I'm T9 incomplete. I have some feeling, but no control at all. I pee into a diaper. I don't hear anything, but it gets warm. :-)

#19 lavender

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Posted 12 July 2016 - 08:43 PM

Vintage can you use a catheter? I mostly time myself for going. Otherwise how are you fully emptying your bladder.

#20 Vintage

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Posted 12 July 2016 - 10:06 PM

I cathed for a while, then had a Foley. With both I had UTI's. Now I have no UTI at all.

#21 maxgorkiy

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Posted 13 July 2016 - 06:11 PM

At 1 year post injury, I am feeling those spasms like I want to go as well. This is different from the general feeling of bladder filling up. I had pretty accurate gauge of urine volume at 6 months post trauma.

Anyway, I was able to take advantage of these "new" spasms only a couple times to mostly empty my bladder. I haven't had much success since. But reading the experience of the rest of you gives me a hopeful trajectory to recovery. At least I am matching my recovery symptoms with what y'all are going through.

Currently I can go with only 1 catheterization a day. Usually in the morning. It helps a lot since I have to travel for work quite a bit. When at home I do more. I always measure what's left in my bladder to gauge progress :-)




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