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Regaining Bladder Control After Cauda Equina Injury?




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7 replies to this topic

#1 bensinjury

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Posted 15 April 2008 - 02:40 AM

Can anyone tell me if they have regained any type of bladder function? My son is 18 months out from injury date and has regained his ability to walk, and regained control of his bowel...but still no bladder, anyone know if we have any chance for this to regain control? Has anyone regained this function this late after the initial injury date?

#2 City Girl

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Posted 15 April 2008 - 03:43 AM

Can anyone tell me if they have regained any type of bladder function? My son is 18 months out from injury date and has regained his ability to walk, and regained control of his bowel...but still no bladder, anyone know if we have any chance for this to regain control? Has anyone regained this function this late after the initial injury date?


I'm 7 months post-injury and just completely emptied my bladder for the very first time last week. I have only been able to do it three other times...out of about 30. I keep trying every day, however. When my muscle function started to flicker, it wasn't consistent either. The pelvic floor is one of the last muscles to return. I only started walking a month ago and it's not well enough to completely divorce my wheelchair yet, but I keep trying. It takes a lot of energy...to do everything now. Sometimes I'm just too tired, but when I'm not, I try. I don't want my body to forget.

Does he have sensation? I have known when my bladder is full for a long time now.

City Girl
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#3 RaginTurtleHead

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Posted 15 April 2008 - 04:28 AM

2 and 1/2 years post.... still no bladder or bowel control. I can tell when my bladder is full most of the time but not in the normal sense, I have kinda had to learn new ways of detecting it lol
“Yesterday is a canceled check; tomorrow is a promissory note; today is the only cash you have - so spend it wisely”

#4 Kwag_Myers

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Posted 15 April 2008 - 10:01 PM

I've been debating whether to reply to this all day. You see, I've just been diagnosed with Cauda Equina Syndrome (CES). It has to do with the lower part of the spinal cord and nerve roots. Since your son is an L2, I thought it might be worth your looking into.

Here’s what I’ve learned so far: The motor/sensory function returns (on average) between 12 and 18 months post injury. (The usual disclaimer here: everyone’s different – no one can predict, blah, blah, blah). Any function that hasn’t returned by then probably won’t. (Here’s my own disclaimer: I believe in, and have often been the beneficiary of, Divine intervention – so “probably” isn’t “never”. That’s just what the doctor’s say, and they’re just practicing medicine).

My PT says that it’s more probable for the nerve root to heal than the nerve. I’m not really sure I understand that, but that’s the only optimistic piece of news I can offer.

I hope I haven’t bummed you out. But my experience these last eight months has been to hope for the best and learn to deal with where you’re at. If it comes back, have a party!

btw, I’m T12 incomplete at eight months post. I’m very limited as to how much I can walk and my “private sector” hasn’t returned (yet).
'Cause that's how I roll! Posted Image

#5 katiekate

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Posted 07 June 2011 - 10:46 PM

My husband is leaking!

He has a t-9 complete injury, but it seems more incomplete. He was told he would regain nothing below the belly button, how it started - but has sensation through his trunk almost completely and some sensation all the way down. He is fine w the bowel program, and pees when he poops. He can force pee out when it starts - but recently it is getting out of hand! He does the self cath fine, but at night it just comes out. Is it time for diapers or is there a chance he is getting some function back?

Injury almost 2 months ago.

Thank you for any responses, we are newbies !!! People with experience is the best resource!

#6 Tetracyclone

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Posted 07 June 2011 - 11:52 PM

At 2 months, yes, he may well get more return. Meanwhile, mop it up!

#7 MTB John

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Posted 08 June 2011 - 02:37 AM

Hopefully it is a sign of good things to come but leaking is a symptom of a urinary tract infection (UTI) so it might pay to get checked by your GP just in case...
Out of the gloom a voice said unto me, "Smile and be happy, things could be worse." So I smiled and was happy and behold things did get worse.

#8 Millard

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Posted 09 June 2011 - 12:50 PM

Can anyone tell me if they have regained any type of bladder function? My son is 18 months out from injury date and has regained his ability to walk, and regained control of his bowel...but still no bladder, anyone know if we have any chance for this to regain control? Has anyone regained this function this late after the initial injury date?



Hello,

There is always a chance to regain feeling, use and control of body parts and functions. I regained by bowels and bladder. For about 37 years I walked with Loftstrand crutches. After multiple bone breaking, my orthopaedic surgeon convinced me to get rig of the crutches and use a power chair. It was great advice I took! Be patient. There will be more return and Ben will have to adjust to it.

Good luck.

Millard
"Life's tough. It's even tougher if you're stupid!" - John Wayne


Spinal Cord Injury & Cauda Equina Syndrome Support

This website is a way for those with spinal cord injuries and cauda equina syndrome to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.