Jump to content


- - - - -

Need Input


  • Please log in to reply
6 replies to this topic

#1 *Carlene*

*Carlene*
  • Guests

Posted 20 October 2005 - 08:20 PM

Hey Everyone,
I'm a nursing student up in Canada and I hope I'm not overstepping my bounds by posting here. What got me interested in this topic of quadriplegia/paraplegia is a nursing ethics assignment I have to do. Generally it concerns a 19 year old who wants to be taken off his respirator after learning he's a complete quadriplegic. Generally, I guess what I'm wondering is if this is a common experience for people who have similar injuries. I really want to get the right perspective and not be one of those nurses who assumes she knows what the person is going through. How can you possibly be a good nurse without getting to know the person first right? Please, if you could help me out it would be greatly appreciated. Again, I apologize if I'm being insensitive by posting here.

#2 AHolland

AHolland

    Member

  • Members
  • PipPip
  • 331 posts
  • Gender:Male
  • Country:Canada
  • Spinal Injury Level / Relationship:T3/T4/T5 complete severe

Posted 20 October 2005 - 11:18 PM

As a fellow Canuck, I will step up to the plate and put in my two bits.

A SCI is a terrible thing to go through. When it first happens it is as if the weight of the world has hit you on your head. Your first reaction is that life is now over. Back when I got injured I was in a special ward where people had gone through terrible injuries. Included in this bunch was a young 18 year old male who had to wear a halo brace. It was like a big ungodly metal structure that was screwed into his head to hold the neck from moving. It was on 24/7 for 6 months. The young guy was so distressed that he would not come out of his room even to eat. This was in a ward where everyone ate together and had similar or worse injuries. They had us eat together so we could see others in similar situations.

Eventually I started to talk to him in physiotherapy and showed him how to do some tricks like balancing on the two rear tires of our wheelchairs. There was no way an old fart was going to show him up. In the end, he was seeking some of us out to play cards and socialise in general. The rest of us gimps became his world to the point where he did not want to go home. Eventually he walked out of the ward with a cane for help. God, but I wish I could have done that.

The point of all this was to make him realise that life was not over just because he became disabled. It's hard. Very hard to adjust to the new world. I think it is easier on us old guys (I'm mid 40's) because we have had life pound on us for a while and we roll with the punches better than the young. This is not to say that there are not times that I wish I could just drive off a bridge and end it all.

It will take time with a dash of hope.

Show him some other people in similar situations if nothing else but to have someone to talk to. Time may not heal all injuries, but it helps a little. Who's to say what will be around the corner in terms of a cure. I cannot sugar coat it and neither should you.

As a side note I am of the mindset that everyone should have the right to direct their life as they see fit including the choice to live or die. If we cannot at least have dominion over our own lives than indeed life is not worth living. The only caution that I would have to add is that a person who is recently injured may not be in a proper frame of mind to find a proper answer to their own lives. If after a couple of years of physical therapy and healing he still wanted to end his life, then I would be the first to support him. It's his life after all. He's just not in a position to make that decision at this time.

Good luck with him.
T4/T5

#3 *Carlene*

*Carlene*
  • Guests

Posted 21 October 2005 - 03:19 AM

Thanks so much for your input. It helps to know that this is a common situation to have to consider. And one of the first things we are taught in nursing is how to build support systems for people by helping them to get in touch with others who have similar experiences. It's nice to know that it actually works. I want to commend you on helping that young guy realize that just because he was injured, his life was not over. I'm sure you made all the difference in his recovery.

#4 hillarymcarter

hillarymcarter

    Member

  • Members
  • PipPip
  • 522 posts
  • Gender:Female
  • Country:Louisiana, USA
  • Spinal Injury Level / Relationship:Spouse-L1 para

Posted 21 October 2005 - 02:50 PM

I think you should bring in some murderball tapes to show him. Murderball is rugby for quadraplegics. Let him see what quads can do. I can understand why he feels like life is over because he doesn't understand what his life can be. When I found out my husband was paralyzed I thought life was over because I didn't know anybody in a wheelchair and I didn't understand that there can be a "normal" life after SCI.
If this doesn't work, maybe y'all can take the Dana Reeves approach. She told Christopher Reeves that if he got to the year mark and still did not want to live, she would help him find a way to die. Of course, she knew that once he was educated on the facts he wouldn't want to take his life.

#5 *Carlene*

*Carlene*
  • Guests

Posted 22 October 2005 - 12:33 AM

Thanks - I never thought of that. Kind of like a contract.

#6 ASHLEYTHOMPSON

ASHLEYTHOMPSON

    Newbie

  • Members
  • Pip
  • 72 posts

Posted 22 October 2005 - 01:27 AM

John has told me that during his stay at rehab, he would wheel himself outside to the parking garage and contemplate wheeling off the edge. Thankfully, he never went through with it. I can only imagine what those first few months must be like.

#7 *Carlene*

*Carlene*
  • Guests

Posted 22 October 2005 - 06:24 AM

I'm sure it's devastating to first receive that diagnosis and realize that your whole life has changed. It must take alot of time to adjust to the changes. It's nice to know that you can still live a full life, even if it's not the life you were used to.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users



This website is a way for those with spinal cord injuries to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.