Feeling Grateful "Normal" teenage boy does abnormal caregiving...
#1
Posted 20 April 2008 - 08:38 PM
Things have been going great -- my brother is also living at our house temporarily, allowing a broken ankle to heal. So the three of us, and occasionally a friend of mine, can get ourselves something to eat, et cetera.
It's been good for my wife to be able to get away -- spend some time with her kids without having to deal with my issues. All in all, I feel very lucky.
Last night, hoisted in the Hoyer lift, I smelled the ashy smell of you-know-what. My boy has not been expected to deal with this kind of situation -- the hired help or my wife have always been able to clean up the toxic waste spill. Until last night.
I never heard one, "Ah... geez", or "oh, this is great!", instead, all I heard was the snapping of rubber gloves and something that went about like this, "don't worry dad, I got you covered." He grabbed some chucks, laid me out and cleaned me up, like it was nothing. He even did the laundry after.
I tried to hold back my tears; I wasn't sad, it was more like, spellbound. It doesn't seem like it has been that long since I was changing his diaper. When did this young kid grow to be such a fine young man?
#2
Posted 20 April 2008 - 09:39 PM
What touches me the most is not so much in your son's willingness to take charge in your personal needs (although that's admirable in it's own right), but that his spirit approached it in a way that lessened any uncomfortableness for you. What a great kid you've got...Kiss him right on the mouth for me.
Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.
#3
Posted 20 April 2008 - 10:47 PM
#4
Posted 20 April 2008 - 11:04 PM
Although I cannot move and I have to speak through a computer, in my mind I am free.
#5
Posted 21 April 2008 - 12:23 AM
I enjoy your scribles. . . the bad ones and the ones like this,,,,,,tear
#6
Posted 21 April 2008 - 01:29 AM
#7
Posted 21 April 2008 - 07:32 PM
Captain Pike, on Apr 20 2008, 03:38 PM, said:
Things have been going great -- my brother is also living at our house temporarily, allowing a broken ankle to heal. So the three of us, and occasionally a friend of mine, can get ourselves something to eat, et cetera.
It's been good for my wife to be able to get away -- spend some time with her kids without having to deal with my issues. All in all, I feel very lucky.
Last night, hoisted in the Hoyer lift, I smelled the ashy smell of you-know-what. My boy has not been expected to deal with this kind of situation -- the hired help or my wife have always been able to clean up the toxic waste spill. Until last night.
I never heard one, "Ah... geez", or "oh, this is great!", instead, all I heard was the snapping of rubber gloves and something that went about like this, "don't worry dad, I got you covered." He grabbed some chucks, laid me out and cleaned me up, like it was nothing. He even did the laundry after.
I tried to hold back my tears; I wasn't sad, it was more like, spellbound. It doesn't seem like it has been that long since I was changing his diaper. When did this young kid grow to be such a fine young man?
You are trully blessed. How special is that. You two must have done a great job raising him. Even if you dont think you did, there must be tons of love in your family. You are one proud dad. And, you should be.
#8
Posted 24 April 2008 - 08:11 PM
Keep up the good work!
#9
Posted 27 April 2008 - 08:38 PM
#10
Posted 28 April 2008 - 06:57 PM
And thanks to everyone for your kind responses.

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