T6 Complete Any Other T6 Completes Out There
#1
Posted 17 May 2008 - 08:55 PM
Does anyone have any advice for me?
Currently he's in ICU but things are going very bad. He's yelling, crying, taking out tubes, and have halluications all day. It's very hard on everyone right now.
What can we expect down the road? Will he be able to care for himself or will he need 24/7 care for the rest of his life?
Does anyone else have Medi-Cal via the state of California? Will they provide a wheelchair, etc?
Any tips will be appreciated.
#2
Posted 17 May 2008 - 09:10 PM
Trinity x
Memento Mori
#3
Posted 18 May 2008 - 12:14 AM
Actually, things are going to be pretty confused for the family in this early stage. But eventually, with good rehab and family support, he'll get to full independence. As a complete he'll always need the wheelchair, of course, and forever will need to learn and take care of his basics but will still be capable of a full and independent life. All the best.
This post has been edited by nomis: 18 May 2008 - 12:16 AM
Although I cannot move and I have to speak through a computer, in my mind I am free.
#4
Posted 18 May 2008 - 12:34 AM
I wanted to get out of there as soon as possible but was tied down in a rotating bed, or the bed from hell I have referred to it. The next memory was that of losing all of my modisty with nurses checking my behind and then students from the medical school needing get my permission to look and my butt. What am I going to tell them no.
The first few days until he is stable are the worst and things get better everyday after so hang in there. Wish I could give you a magic ball but we are all different. Will be thinking about you.
knowthill@hotmail.com
#5
Posted 18 May 2008 - 02:58 AM
#6
Posted 20 May 2008 - 04:15 PM
I get up in the morning, I have a shower, get dressed, have breakfast, drive to work, work all day, drive home, play with my daughter for a few hours, put her to bed, cook dinner, and crash in front of the TV.
#7
Posted 20 May 2008 - 10:00 PM
Taylor7172, on May 17 2008, 04:55 PM, said:
Does anyone have any advice for me?
Currently he's in ICU but things are going very bad. He's yelling, crying, taking out tubes, and have halluications all day. It's very hard on everyone right now.
What can we expect down the road? Will he be able to care for himself or will he need 24/7 care for the rest of his life?
Does anyone else have Medi-Cal via the state of California? Will they provide a wheelchair, etc?
Any tips will be appreciated.
I'm sorry to hear about your son. I'll try to answer your questions, but I'm kind of new to this myself.
What to expect in the days to come is a difficult question to answer. The best advice is just to take it one day at a time. Don't put unnecessary pressure on him, like, "you'll be doing this or that in no time". Just be supportive.
He'll need some help early on, but eventually he'll most likely want to do as much on his own as you'll let him, so let him. Just be there in case it goes wrong.
I don't know about California, so the best thing to do is to ask your son's physical therapist when he goes to rehab.
Also, my iPod was a life saver. When he goes to rehab, they'll be waking him up in the middle of the night and the iPod is a great way to help pass the time if he can't get back to sleep.
As for you, don't be afraid to ask a lot of questions, both of the doctors and here. That's why we are all here, to help each other out.

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