8 replies to this topic

[freedomdan]

anyone remember their 3 month anniversary post-sci.
t12/l1 fracture,
no spasms
hip movement
no control of bowels or bladder
currently t8 complete

experiences, advice, how was it after 3 months?

[E-DOG]

freedomdan, on May 21 2008, 05:25 AM, said:

anyone remember their 3 month anniversary post-sci.
t12/l1 fracture,
no spasms
hip movement
no control of bowels or bladder
currently t8 complete

experiences, advice, how was it after 3 months?

Well let's see. Thinking back, I'd say................. IT SUCKED!
If your injury is complete, my guess is the bowel bladder thing may not get any better.
Your spine is probably still in shock so the spasms may not start for a while. If they do at all.
Things never get easy, but they do get easier. As time goes by you'll learn new and easier ways to do things. I was taught how to put my pants on by a therapist. A few months later I found a much better way. But I had to figure it out on my own.
I have about a year now. Most important thing for me is: Life in a chair ain't easy, but if I have a life with enough rewards in it, then it more than makes up for the crap I have to put up with.
Hobbies, family, interests, job, pets. Whatever brings a little joy and fulfilment to your existance will offset the shit you have to go through on a daily basis.
E

[nomis]

Yup. That's in no mans land. It can only get better.

[Kwag_Myers]

Hmmm! Third month is about the time I started having set-backs. What little bowel and bladder function I had, I lost. Overall, I didn't start to feel human again until about six months post.

[stevensgirl14]

Hey Freedom

I'm an occupational therapist and AB'd, but my boyfriend is a T-12, no B&B or spams. I met him after the injury with was two years ago. I agree with the wheelers here.

Never settle with the way a therapist showed you how to do something unless you really like it. You have to find your own way and routine. I've learned better ways of doing things from my patients then from my text books. Have you thought about wheelchair rugby? It's a great way to be active and grow a support network.

[freedomdan]

bump....

comments now anyone remember how they were 5 months post sci?

did anyone get any feeling back arond that time, any b and b.

looking to start an intensive therapy regime soon.

stevensgirl14, on Jul 15 2008, 10:33 AM, said:

Hey Freedom

I'm an occupational therapist and AB'd, but my boyfriend is a T-12, no B&B or spams. I met him after the injury with was two years ago. I agree with the wheelers here.

Never settle with the way a therapist showed you how to do something unless you really like it. You have to find your own way and routine. I've learned better ways of doing things from my patients then from my text books. Have you thought about wheelchair rugby? It's a great way to be active and grow a support network.

[carole338]

I kept a journal and I certainly remember the 3 month mark. It was when they sent me home from my in-patient therapy hospital. I forced them to take out the catheter before I left and I mostly control my bladder. My balance has gotten much better as well as my transfers and upper body strength since then.

I’m lucky. At a year and a half I have improved and not gone downhill. Can’t say that for many of the people I meet in wheelchairs.

[TimRS]

Find out as much as you can about every aspect of SCI. Watch and learn from people who have been inured for a while, it's the best font of knowledge. It does get better with time. Gradually the rest of your life will come back into the equations, and while your injury will always be there, at the moment it's centre stage, and with time it will be upstaged by other (hopefully good) stuff.

And whatever it is, find a way of doing it and THEN decide if it's worth it or not...

[turbrotoy]

Find positive people and a good support group.It only gets better the harder you try!!Push the doctors hard and get your bladder and bowel program down asap.

Good luck I feel for you!!!