ive been disabled for 6 yrs c5-c6 the pain started in my pinky toe on my right foot and over the 6 yrs it has migrated all the way to my a-- hole it dont hurt really bad everyday but the 2-3 days a week it does hurt i can barly stand it ive been to severle differ dr. been through every test nothing can explain it ( but i live in a small town and im thinking they might not be the best dr. in the world so i need some help does anyone here have this problem or have any ideas in what i should do to stop this pain. im serously at the end of my rope
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Nerve Pain ! ! !
Started by
john kelly485
, May 21 2008 01:22 PM
5 replies to this topic
Top#2 *jlo*
*jlo*
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Posted 21 May 2008 - 04:44 PM
I hear ya. I'm a t-3 t-4 with that same nerve pain
from my toes to my butt. I have had it ever since my injury.
For me went I drink high sugar drinks it makes it worse.
I have tried all sorts of meds and they have helped people in
the past but not me. I'm not a big med guy though.
All I can say is eat healthy and that seams to help me.
Stay away from sugars. Hope this helps.
Joe
from my toes to my butt. I have had it ever since my injury.
For me went I drink high sugar drinks it makes it worse.
I have tried all sorts of meds and they have helped people in
the past but not me. I'm not a big med guy though.
All I can say is eat healthy and that seams to help me.
Stay away from sugars. Hope this helps.
Joe
#3
knowthill
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Posted 21 May 2008 - 06:11 PM
I know the pain you are talking about. Mine is localized to my left side and goes from my toes to my arm pit. It gets so bad at times I can’t raise my arm higher then my shoulder. My Dr. has given me all the tests we have in our small town hospital. I have lived with this situation for 5 years of my 14 year paralysis.
The pain is definitely worse at night then during the day. It is bad enough at times I can not sleep or am violently awoken in the middle of the night. I don’t complain or even bring it up any more because it has to be in my head according to my wife and relatives.
Thanks for starting this thread. I thought I was alone in this situation. Sorry I couldn’t be more help other then that I in this with you and feel your pain, literally.
The pain is definitely worse at night then during the day. It is bad enough at times I can not sleep or am violently awoken in the middle of the night. I don’t complain or even bring it up any more because it has to be in my head according to my wife and relatives.
Thanks for starting this thread. I thought I was alone in this situation. Sorry I couldn’t be more help other then that I in this with you and feel your pain, literally.
Jeffrey H. Thill
knowthill@hotmail.com
knowthill@hotmail.com
#4
Notwheels
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Posted 04 June 2008 - 04:38 AM
Central Cord Syndrome is very painful and this could be the problem. I'm in major pain all the time.
Notwheels
Notwheels
Author, A Complete Plain-English Guide to Living With a Spinal Cord Injury: Valuable Information From a Survivor (iUniverse 2007). Available at online bookstores worldwide.
#5
gsp23
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Posted 26 June 2008 - 09:17 PM
If its nerve pain and not muscle pain (which I am guessing it is) see your doc. There are meds you can take for it. I have horrible nerve pain which was affecting my daily living so severly I couldnt sit up on my own. I got it under control with Neurontin but after 2 yrs I just made the change to Lyrica to help with some of the sleepiness I had. Your doc can make proper recommendations for you though.
Quotes are nothing but inspiration for the uninspired.
#6
Daniel G. Savoie
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Posted 15 November 2008 - 06:37 PM
Hi! I am a SCI registered nurse... But I am also a paraplegic (T10, for 20 years now). I have been having since day one. My pain is like a burning shooting pain (like a spleeping foot) that starts in my right foot to the side of my leg to my hip. I tried many things such as antiflammatory meds. anticonvulsivant (Neurotin) to opiods (Tylenol #, Percocet). But what I find BEST is: Lyrica (neuropathic pain medicationn) and the Neurogesic Patch (fentanyl/opiods meds). It had made a HUGE difference in my life. Everytime that I forget to take Lyrica for a day or two, I have PAIN. I strongly suggest it.
Hope this helps,
Daniel
Hope this helps,
Daniel
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