Hi everybody!
My partner is currently in hospital after having a car accident last December. His injury sustained is a T5 complete and he is going through his rehab at the moment. He is having great difficulty with his SIC as he keeps firing off in between. Has anybody else experienced this and was given something to help? He has increased his medication for his bladder but it doesn't seem to help. The docs have mention having botox injections into his bladder or a superpubic, I'm not sure what these are or will do.
I'd be grateful for any help, thanks x
0
Bladder Control
Started by
dee342
, May 27 2008 07:28 PM
1 reply to this topic
Top#2
Ian D
-
- Members
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- 24 posts
Newbie
- Gender:Male
- Country:South Africa
- Spinal Injury Level / Relationship:T4/T5 complete
Posted 28 May 2008 - 07:17 AM
Welcome Dee342,
You're in the right place to get all the info you need I wish these forums existed when I had my injury.
I'm T4/T5 complete for the last 21 years and can remember those early days. I too had great problems with intermittent catheterization and tried it for about six months, eventually giving up because of leaks and infections etc. Went to a permanent indwelling catheter which had to be changed every month the leaks improved but over the years I was constantly increasing the size of the catheter and the balloon.
I was always having problems with getting the catheter caught when transferring and this ended up causing problems.
About 11 years ago I had a superpubic catheter put in and haven’t looked back since, wish I did it from day one I change it myself every 6 to 10 weeks and very very rarely leak. Despite the fact that you need to wear a bag it’s the most liberating thing. Very few infections, hardly any spasms, and so easy to go to an ordinary urinal to empty the bag, no messing around whilst you’re out looking for a place to catheterise.
I’m sure there are advantages to not going the superpubic route and you need to take advice from your doctors and urologist but the superpubic route was the best for me.
Take Care hope you and your fiancé pull through all this, the first couple of years were definitely the worse for me, took a lot of adapting and emotional strain. It never gets easy but it certainly gets easier
Good luck Ian
You're in the right place to get all the info you need I wish these forums existed when I had my injury.
I'm T4/T5 complete for the last 21 years and can remember those early days. I too had great problems with intermittent catheterization and tried it for about six months, eventually giving up because of leaks and infections etc. Went to a permanent indwelling catheter which had to be changed every month the leaks improved but over the years I was constantly increasing the size of the catheter and the balloon.
I was always having problems with getting the catheter caught when transferring and this ended up causing problems.
About 11 years ago I had a superpubic catheter put in and haven’t looked back since, wish I did it from day one I change it myself every 6 to 10 weeks and very very rarely leak. Despite the fact that you need to wear a bag it’s the most liberating thing. Very few infections, hardly any spasms, and so easy to go to an ordinary urinal to empty the bag, no messing around whilst you’re out looking for a place to catheterise.
I’m sure there are advantages to not going the superpubic route and you need to take advice from your doctors and urologist but the superpubic route was the best for me.
Take Care hope you and your fiancé pull through all this, the first couple of years were definitely the worse for me, took a lot of adapting and emotional strain. It never gets easy but it certainly gets easier
Good luck Ian
Once I thought I was wrong..... but I was mistaken
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