12 replies to this topic

[sincere]

almost a yr post and struggling with this issue.. any one dealt with this situtation and found a magic pill for leakage besides enablex or oxybutin

[In The Wind]

try a condom cath...

[Zammo]

Yeah I leak. Normally happens during transfer etc, but sometimes just comes out without any effort.

I use a sheath cath. It manages the situation.

[qbounce]

There are MANY different drugs out there to try . . . dosages to play with. Keep pluggin' away.
And . . . stay off the steroids, will yah?-jk

[sincere]

[size=2]

qbounce, on Jun 1 2008, 01:56 PM, said:

There are MANY different drugs out there to try . . . dosages to play with. Keep pluggin' away.
And . . . stay off the steroids, will yah?-jk

anybody with a sugestion with meds that works for them with leakage promblems, cath is not one for me! it will be a blessing, oxbutinin work for a few months but it took away my boxers after 5 months of no leak???

[qbounce]

[/quote]
oxbutinin work for a few months but it took away my boxers after 5 months of no leak???
[/quote]

What does, ''it took away my boxers'' mean? Sorry I didn't understand this sentance.

Do you mean to say you had to wear diapers because the oxybutynin stopped working properly?
Please clarify

[hurbshankin]

I take Ditropan. I have a suprapubic tube. Initially I was leaking at night, enough to soak and overflow my didy. The Urologist prescribed Ditropan and it dried me right up, a little cotton mouth but not too bad.

Hurb

[Mike (c4-5) & Lorena]

I could not get my bladder to stop leaking. And, I had a hard time cathing as my spinctor muscle wouldnt open. I went to a condom cath and had a eurolume installed. No infections for over a year now.

[edlee]

I'm using a condom cath myself, but not continually. I switch back and forth with straight caths as the mood or circumstances dictate.

For the most part, it depends on my plans for the day,,,, If I have the opportunity to cath at about three hour intervals, I have no leakage,,, but if I don't think that will be feasable, I opt for the sheath.

The problem with switching is forgetting which schedule I've selected,,,,,,not good!!!!

All of the pills work to some extent, but nothing is really foolproof. You might want to consider botox injections,,,,I've heard that some have had good luck with those.

The next options are surgery or rubber bands,,, but I'ld stay away from the rubber bands if I were you.
ed

[sincere]

[quote name='qbounce' date='Jun 4 2008, 12:02 PM' post='61178']
[/quote]
oxbutinin work for a few months but it took away my boxers after 5 months of no leak???
[/quote]

What does, ''it took away my boxers'' mean? Sorry I didn't understand this sentance.

Do you mean to say you had to wear diapers because the oxybutynin stopped working properly?
Please clarify
[/quote]
WELL NOT ''DIAPERS'' DEPENDS WELL SAID, DID YOU UNDERSTAND THAT ONE....???? YOU UNDERSTOOD VERY WELL CAUSE YOU QUICK TOO ANSWER YOUR OWN QUESTION? NOW THATS BEING CLARIFY! EVERYBODYELSE UNDERSTOOD SORRY IF IM BEING HARSH ! ONLY IF YOU NOT UNDERSTANDING!



THX EVERYONE FOR THE HELP, TRUELY APPRECIATE IT!

Edited by sincere, 10 June 2008 - 07:38 PM.

[qbounce]

Hey Sincere,
It was just a point of clarification, NOT in any way meant to put down or degrade you.

Believe ME, I've been there too! I tried 3 kinds of meds before landing on oxybutynin, but there's also DetrolLA.
I noticed you didn't mention this one on your original post.

Ask your urologist to try different things. Hopefully one will work better than the others. Ed made a point that nothing's foolproof . . . that's true to some extent. But, for the most part, the only time I've noticed having accidents is when I'm putting pressure on the bladder by leaning over to pick something up from the floor.

Hope this helps.

Edited by qbounce, 11 June 2008 - 05:11 PM.

[In The Wind]

well let's see....do you really want help? You've shot down every suggestion here, some without even giving a reason, and then got snotty when someone asks for clarification.

Just what's wrong with the answers given here? As for the condom cath, I use it exactly as edlee does, which is basically that if I'm at home I don't wear it unless I'll be bending at the waist alot. If I plan on going out for any length of time, I'll wear the condom cath.

Real options for us are limited and are really only partial solutions, but they allow us to function. Somewhat.

Why don't you try telling us just what the problem is? You leak all the time? Only sometimes? Only when you bend at the waist?

I tried the oxyb..it worked but it also slammed my bladder spincter so tight I could not cath without getting a lap full of blood and a really, really bad case of AD ( The kind where the hammer is knocking my head and my teeth rattle)

Edited by In The Wind, 11 June 2008 - 09:36 PM.

[sincere]

qbounce, on Jun 11 2008, 12:59 PM, said:

Hey Sincere,
It was just a point of clarification, NOT in any way meant to put down or degrade you.

Believe ME, I've been there too! I tried 3 kinds of meds before landing on oxybutynin, but there's also DetrolLA.
I noticed you didn't mention this one on your original post.

Ask your urologist to try different things. Hopefully one will work better than the others. Ed made a point that nothing's foolproof . . . that's true to some extent. But, for the most part, the only time I've noticed having accidents is when I'm putting pressure on the bladder by leaning over to pick something up from the floor.

Hope this helps.

hey sry for the way i express myself.. just took it the wrong way... i just dnt like the cath comdoms cause of the kids and i just find myself frustrating but its ok, somehow someway, there will be some relief, i been taking enablex and like the guy above with the dryness bled thru cath but found myself taking it easy with the cath and it seem to be working! THX AGAIN EVERY 1 AND ANY 1 I OFFEND!