31 replies to this topic

[dorkette]

ARGHHHHHHHHHHHHHHHHHHHHHHHHH! I hate with a passion that life has to revolve around bathroom stuff. Hate. Hate. Hate.














*sigh* Okay, that's out. Thought y'all would be the only ones who truly understand.

[Kwag_Myers]

I feel your pain, sister. I hate that life is divided up into four hour segments. Or that it takes me an hour to get ready for bed.

[Soryfam]

Or that it takes so darn long to get dressed/ready in the morning.Or even that it takes me so much longer to do anything. Arrrggghhh is right. Thanks for letting me get it out.

Sandy

[wheelinPEACE]

the bathroom think really does SUCK and what makes me want to scream is the fact that the top half of me looks normal and the bottom half is so small.....I look deformed.

[Quad65]

Yup. ABs don't get that it takes us 5 times longer to do ordinary things at 5 times the energy cost.

[topperf]

"I'm not shure I'm done" #1 on my "this is f*cked, and I've only just arrived at the bathroom, list"

[tinamarie]

Ditto to all that's been posted about this.

tinamarie

[City Girl]

I hate the emotional rollercoaster...FEAR, FATIGUE, FRUSTRATION. Often these feelings drive me to tears. I think I've cried more in the 8 months post-injury than I have in my entire life. Other days I am happy for all the good things in my life. I am proud of how I am managing disabled in an able-bodied world.

[topperf]

"I am proud of how I am managing disabled in an able-bodied world."

We should be! everyday I stay "sane" is a small victory, and to be able to see the good things in life, that is yet another achivement.

you go girl!

[Avocado Baby]

And when people have the cheek to comment on the fact you took a while in the bathrrom. You trying pulling your trousers up while sitting on your arse!!

You're all sane?! Oh dear...shall I get my coat?! I'm pretty insane!!

[Mike (c4-5) & Lorena]

Ahh, it renminds me of a story.

The brain the heart, lungs and every body organ were arguing who was the boss. For moths the arguement continued. Then the ass shut down. A week later, they all agreed. The asshole is always in charge.

[KarenFerguson]

I hate the way the general public sees me as *just* a disabled person. Sure I'm in a wheelchair, but frankly, I forget about it a lot ... which I suppose is a great thing. Then some idiot will say ... "wanna race!" or "Slow down you might get a ticket." It's like a slap in the face. I'm a mature adult and don't like being treated as a child. I wish people would just keep their little comments to themselves. It hurts that others just see the chair and nothing else. ARGH!

[E-DOG]

DO YOU MEAN TO TELL ME I"M NOT THE ONLY ONE WITH THESE PROBLEMS!!!
Well I'll be dipped in shit!

The emotional rollercoaster ride from Hell and beyond. We've all fallen through a tear in the fabric of time to a dimention of incredible inconvenience and pain the likes of which no a/b could ever imagine. Be proud people. We'll all be going to heaven when we die.
We have spent our time in Hell.
E

[dorkette]

Oh, E-DOG, that's why people automatically think that because I'm in wheelchair I'm this nice, sweet innocent little girl who never curses and always does what she's supposed to and a shoe-in for heavan. Not that I'm complaining. Having hell now instead of later works for me

Karen, I understand but think it's a little funny when I think/or friends say the "forgot you're in wheelchair" bit. I don't think it's necessarily you forgot, that's like saying oh I forgot you had blonde hair, are short, etc etc but I think it's forgot as in ceasing it to matter or be a issue or something to be mindful of. Awareness without being aware. My nephew is almost four, and about two weeks ago was the first time he's seen me out of my chair and he got this thoughtful look and was like "why are you in there" indicating the chair and I told him because I couldn't walk and he just said okay and went back to playing then climbed on the couch with me and watched tv. I mean, I know he knew the chair existed because he has always played with the wheels and brakes and etc etc but since to him to was always a part of aunt katy then it wasn't different or special.

[Liberty]

Things that make you go Arrrrggggghhhhh. The b&b thing has to be on top of the list. And I not talk'n blowjobs and beer

[E-DOG]

Liberty, on Jun 8 2008, 02:32 PM, said:

Things that make you go Arrrrggggghhhhh. The b&b thing has to be on top of the list. And I not talk'n blowjobs and beer

Bed and Breakfast?
Hard to find one that's w/c accomodating. The eggs are always so runny they spill down my shirt. I look wierd w/ egg on a brand new guaybera. Me an' Raoul (my transexual caregiver with a flattop haircut) have now taken to vacation in the back allies of small Cuban barrios where the coffee's strong and the effluvium of dispair, stronger.
E

[azx43]

KarenFerguson, on Jun 5 2008, 05:26 PM, said:

I hate the way the general public sees me as *just* a disabled person. Sure I'm in a wheelchair, but frankly, I forget about it a lot ... which I suppose is a great thing. Then some idiot will say ... "wanna race!" or "Slow down you might get a ticket." It's like a slap in the face. I'm a mature adult and don't like being treated as a child. I wish people would just keep their little comments to themselves. It hurts that others just see the chair and nothing else. ARGH!

I completely, totally agree, and I feel your pain! I personally am proud of being different, and also tend to forget about my chair a lot. I have Spinergy wheels with bright blue spokes, and that was intended to kind of point out that I don't exactly fit in and don't mind it in a positive way. I've found that this cAn work 2 ways- make me more noticeable and even safer (people tell me how 'cool' my wheels are), or make it so they seem to be afraid of my chair. Yes, it hurts quite a lot when ALL people see is the chair and can't get past that. How would they like it if their defining characteristic, the one thing I really noticed and even commented on, was their weight or their hair color, etc.?

[sincere]

City Girl, on Jun 2 2008, 03:50 PM, said:

I hate the emotional rollercoaster...FEAR, FATIGUE, FRUSTRATION. Often these feelings drive me to tears. I think I've cried more in the 8 months post-injury than I have in my entire life. Other days I am happy for all the good things in my life. I am proud of how I am managing disabled in an able-bodied world.

its soooo funny that you manage to say words i express to many, such as family n friends .... i cry also more since my accident than a life time also, not just on me but others as well. it made me more sensitive with life but strong in able to live life on life terms.... worgs from my heart manifested...

Edited by sincere, 28 June 2008 - 05:04 PM.

[PetitMortVampyre]

While I am AB, I was once in a car accident many years back, with an sci ( I can still pop a mean wheelie ). Since then, I have had nothing but problems bathroom-wise. It really sucks, I can't go out to a nice place for lunch or dinner, as within 10 mins of eating, into the bathroom I must toddle. Very, VERY rarely do I get to sidestep this event. I have to plan things around meal time. Telling people I cant go anywhere for at least 30 mins after eating, etc. My sis loves to go have coffee ( and lunch ) during shopping outings, and I have to get her to do the shopping 1st, before eating, if possible.

At home its not such a bad thing, as I am able to use the facilities immediately. I hate having to go into a public restroom. Even as a child, I didn't go when I was in school, waited til I got home. Can't do that these days. So, as a result, I don't go out to eat very often! Good thing I don't have to date, or I'd be in serious trouble.

[jetski]

There are 2 things I hate.
1. Not having hands or fingers to pull my pants back on and having to brace myself against the wall while I struggle.
2. Not having a place to talk to someone about everyday struggles. I always write emails to myself, but I don't learn much that way. Its like an echo. The price one pays for being a gypy.

Bill of Illinois

[E-DOG]

jetski, on Jun 28 2008, 01:16 PM, said:

There are 2 things I hate.
2. Not having a place to talk to someone about everyday struggles. I always write emails to myself, but I don't learn much that way. Its like an echo. The price one pays for being a gypy.

Bill of Illinois

Yo, knucklehead, you now have a place. And a gaggle o' gimps with the same or similar struggles.
Some of them even have a sense of humor.
Not me though. I take this shit VERY SERIOUSLY. So don't ever be joking around when I'm posting.
EVER.
E-dog

[Quad65]

Ya wanna know what really burns my ass?





A flame 'bout two feet high.





Sorry. Couldn't resist. So, shake me out and toot me. No, wait. Strike that; reverse it: Take me out and shoot me.

[stevensgirl14]

Quad65, on Jun 29 2008, 03:39 AM, said:

Ya wanna know what really burns my ass?





A flame 'bout two feet high.





Sorry. Couldn't resist. So, shake me out and toot me. No, wait. Strike that; reverse it: Take me out and shoot me.

I hate people think I'm a sweet person for dating "someone in a chair", or thinking we can't perform a task ourselves, like at the amusement park. Ummm, hello, he's done this before, his arms are huge!!! or thinking I should help him with everything. I wouldn't talk off a few steps if he needed help.

Oh, it feels good to vent!

[E-DOG]

Quad65, on Jun 28 2008, 08:39 PM, said:

Ya wanna know what really burns my ass?





A flame 'bout two feet high.





Sorry. Couldn't resist. So, shake me out and toot me. No, wait. Strike that; reverse it: Take me out and shoot me.

Where do ya find matches in Zimmerman, Minnesota?
E

[Quad65]

Matches? I ain't had a match since Superman died. We just rub some sticks together 'til they ignite. And, hey. Knock off the Zimmerman jokes, OK? We're a real town, fer crying out loud. We got a bank, a liquor store, a good pizza joint, an A & W, a couple restaurants, a couple bars, gas stations. I think there's even an indoor toilet or two. Oh yeah. We have a Poh-leece Department, a Fire Department, and a Post Office, too.

We're right civilized. Shoot, if you divorce your wife, she's still your cousin!

[itsjustme]

I used to wake up and look forward to sitting outside in my swing sipping on creamy French Vanilla coffe and watching the hummingbirds feed on my fence row of deep purple velvety Morning Glories. Now I wake up to catheters and rubber gloves...hate...hate...hate!

And, I really hate being defined by my chair. This chair isn't who I am. It's just what I'm sitting in.

[KimAndSophie]

dorkette, on Jun 2 2008, 01:54 AM, said:

ARGHHHHHHHHHHHHHHHHHHHHHHHHH! I hate with a passion that life has to revolve around bathroom stuff. Hate. Hate. Hate.

*sigh* Okay, that's out. Thought y'all would be the only ones who truly understand.

I know what you mean, but on the other hand we can shift the schedule around a little bit and do the bathroom stuff a bit early so we naver have to get up and leave halfway through the movie to go pee!

[carole338]

On the bright side, I actually went in my pool for the first time since my SCI, I felt and looked normal while holding on to the side. The ARGHHHHHHHHHHH part is when I have to get in and out and I need two strong people to pick my up.

My day does sometimes revolve around my bathroom needs. I accept this as part of my new life. I have an AB brother who needs 2 hours for his BM program. I figure I’m ahead of him..

AHHH, heavy diapers and pads get me through a lot.

Carole

[russ1]

dorkette, on Jun 2 2008, 06:54 AM, said:

ARGHHHHHHHHHHHHHHHHHHHHHHHHH! I hate with a passion that life has to revolve around bathroom stuff. Hate. Hate. Hate.

*sigh* Okay, that's out. Thought y'all would be the only ones who truly understand.

The whole bathroom thing is a PITA (or probably would be if we could feel it :-) ) and I used to feel much the same but there is light at the end of the tunnel. 5 years down the line and the bathroom thing is now more that my bathroom stuff revolves around my life - fitting in a 45 minute slot at some point every other day is the reality of it now I have sorted out my routine. Still not ideal but a whole sight better than planning my life around bathroom stuff.

Just wanted to let the newly injured venting here that things do improve and there's every chance you won't feel like life revolves around the bathroom for ever.

[Ches]

I often have to remind myself that I used to spend an hour or two getting ready everyday anyways. Back then I would leisure around a bit more.. but its all the same. Just feels like more work now.