[Rochelle]

I am new at this "online" thing. I have ben trying to find a support group in our area to discuss different topics with but can't find one so I thought I would try the "online" thing. I have been married to my husband 11 years on May 31st and he has been paralized-T12-for 14 years as of June 1st. He was working when a forklift broke and fell on him. He had multiple other injuries inculding a torn aorta and had to have open heart surgery. We face all the same day to day things that most parapelic's face bowel care, two pressure sores-one on his butt and one on his heel, ect. but the one thing that I was wondering about was if other people have a lot of pain. My husband has A LOT of pain to his sides. He decribes them as "burning" or someone is "shocking/zapping" him. He also has leg pain. A very heavy, acking, constant pain. We have been to doctor after doctor and tried every medication there is. Now he is on Methadone and Baclofen with little to no relief. "The pain" is destroying our marriage. He is going crazy, has no energy, is crabbing, and COMPLAINS EVERY DAY. Then it makes me crabby, sad, upset, ect. It is hard to watch someone you love suffer so much everyday. Then there's the day to day stuff. I work full time cuz he can't cuz of his sores and pain, but then I have to come home and do EVERYTHING around the house. Mow, dishes, laundry, bills, take care of two small boys (ages 5 and 2), I'm exaushted! But I know he can't help it that he feels like shit everyday and just can't do anything. Anyone out ther that has a lot of pain? If so, have you found anything that works? What should we do?

[C Herod]

[
Hi,

My husband has pain all the time. He just takes pain killers, but they don't work most of the time. i do everything and work full time and have kids to. its so hard. he is c6/c7 so he has pain in his legs, hands, and arms. all the paralized parts. usually shooting pain, but he also has what he describes as charlie horses. he hates loud noises to. says it sends a shockwave of pain down his spine. weird huh. he complains all the time. it drives me crazy he also has no energy. nothing really helps him. he says he just gets used to it, and has to learn to deal with it. he hates taking pills. i know i didnt help you much but i know how you feel. our marriage is not going well. tired of being brought down all the time. want to just be happy without feeling guilty about it.







quote name='Rochelle' date='Jun 3 2008, 02:57 PM' post='61063']
I am new at this "online" thing. I have ben trying to find a support group in our area to discuss different topics with but can't find one so I thought I would try the "online" thing. I have been married to my husband 11 years on May 31st and he has been paralized-T12-for 14 years as of June 1st. He was working when a forklift broke and fell on him. He had multiple other injuries inculding a torn aorta and had to have open heart surgery. We face all the same day to day things that most parapelic's face bowel care, two pressure sores-one on his butt and one on his heel, ect. but the one thing that I was wondering about was if other people have a lot of pain. My husband has A LOT of pain to his sides. He decribes them as "burning" or someone is "shocking/zapping" him. He also has leg pain. A very heavy, acking, constant pain. We have been to doctor after doctor and tried every medication there is. Now he is on Methadone and Baclofen with little to no relief. "The pain" is destroying our marriage. He is going crazy, has no energy, is crabbing, and COMPLAINS EVERY DAY. Then it makes me crabby, sad, upset, ect. It is hard to watch someone you love suffer so much everyday. Then there's the day to day stuff. I work full time cuz he can't cuz of his sores and pain, but then I have to come home and do EVERYTHING around the house. Mow, dishes, laundry, bills, take care of two small boys (ages 5 and 2), I'm exaushted! But I know he can't help it that he feels like shit everyday and just can't do anything. Anyone out ther that has a lot of pain? If so, have you found anything that works? What should we do?
[/quote]

[squarie41]

wow we all sound the same lol.my hubby the same is on gabbapentin 1200 mg 3 times a day and still has burning and electric shocks down his legs,i dont think there is much out there that can really help.ive looked on the web and seen countless doctors but not much going im afraid.we all need a break by the sounds of things,maybe a night off would do us good,i know just venting on here is helping me lol as no one understands more than another carer or para.my hubby always says to me "u dont understand u can walk i cant do this or that and u dont know what its like".i
i know i dont know what its like but ive been thru it just as much as him maybe i can walk but that shouldnt make me his slave and feel sorry for him all the time should it,?We to are fighting and on the brink of colapse so i feel for both of u its hard and its hard for them as well so who wins,i dont know,all we can do is keep trying or walk out and let them fend for themselves.

[melash]

Wow I totally understand where u women are coming from.My husband was in the same pain.So I know exactly what u all mean!!!He has been on all sorts of meds trying to overcome this pain or at least dull it enough to deal with everyday life!!He was on fentinal patches but he had a skin reaction to the adheisive.Please dont mind my spelling i am just writing how i sounded them out.OOPS!Then he was on oxycontin which made him like a zombie so he didnt like those.Now he is on gabapentin,baclifin and the ones i believe work are morfine and dilaudid.They are very addicting so make sure he only take what is prescribed!!These meds make him able to deal with everyday life and he even has days when he wants to go shopping!!!!Anyways i hope this helps a bit!!So u can feel free to have happy days also.Not feeling like how can i be happy when he is in so much pain!!

[knowthill]

I went to my Doctor a month ago for the same symptoms you stated. They took all types of tests and of course had to ask me how bad it hurt and where. Well now how do you answer those questions? I want to just slap them sometimes and ask them if it hurts.

Anyway am now on 900 mg gabapentin 3 times a day and also take Tylenol like an addict. He took ex-rays of my hip and found arthritis but didn’t ex-ray my leg. Come to find out three weeks later I had broken my leg and has now calcified to the point they are not gong to brake it again in order to set it correctly.

Just want to give you the rest of the story, from the chair. I would much rather work sounds like talk I know but I do think about it a lot. Getting out of bed is the first step and I force myself to keep a journal and contribute to sites like this are my therapy. And it is fun to Google myself and find my posts.

You are not alone but if you need to just chew someone’s ass pick me. You are going to have to hurry not much left my wife has already had her share and a wound took a big chunk.