[Anwer Pasha]

Pakistan is now at world highest road accident rate and due to other circumstances Pakistan is facing highest average of Trauma.Very less medical facilities and death toll in head injury is very high,Survivors with brain injury have no place for them anywhere in Pakistan.Benazir Bhutto twice premier of Pakistan was recent victim of head injury who expired in result of a suicidal bomb blast on 27th December 2007, Another famous person was Zahid Khaqan Abbasi who was son of Khaqan Abbasi a minster and senior army general and brother of Shahid Khaqan Abbasi now a minister and former PIA chief who survived after a brain injury in 1988 but could not improve and died almost after 14 years, I am sending you my story, It is a sad story but we need special assistance because we are doing our best and there is success in this hard and normally no cure case, Story of a father of a Pakistani patients Jawad Pasha 26 with traumatic brain injury locked in syndrome am not good at computer and not good in English so i am sorry if you found it weak. I am father of 3 sons and a daughter. One of my son is working with me rest 2 were studying in university.One named Jawad Pasha when he was 23 found injured at one hospital with some unknown accident on 13th September 2004 and since than he is totally disable like locked in syndrome.we are helpless here even you can find no website here on the subject of traumatic brain injury. he was under treatment since than at the 2 top hospitals here and visited almost all famous hospitals here at Pakistan, brought him twice to Singapore SGH but only loss because they have no specialty regarding T B I. my son is fully wise smiles and laughs when listen such talks tries to move a little his hand or foot , identify and remember people and voices working hard since than without guidance. He is with good heath till now. Now after a long time a Pakistani doctor at USA is helping and guiding me, but having other tragedies meanwhile. My youngest son Ubaid Pasha who was 23 was kidnapped for ransom on 5th March2007,the same day on which he completed his computer degree and kidnappers received the ransom but they killed him and his body was found after arrest of the kidnappers and one of killers was the person who supplied medical equipment for my son Jawad. My son was a Hope for me and his elder disable brother ,and me going old now,Meanwhile Land mafia power full here found these events fit to capture my business they torched threatened me and my family and beaten my son working with me, what to do? It is 4th year of whole night awakening with my son.I don't know why god selected me for this all but thanks to god he gave me courage to fight. Anwer Kamal Pasha; Mail to Share me; ,jawadpasha82@gmail.com

[Anwer Pasha]

Anwer Pasha, on Jun 10 2008, 09:37 PM, said:

Pakistan is now at world highest road accident rate and due to other circumstances Pakistan is facing highest average of Trauma.Very less medical facilities and death toll in head injury is very high,Survivors with brain injury have no place for them anywhere in Pakistan.Benazir Bhutto twice premier of Pakistan was recent victim of head injury who expired in result of a suicidal bomb blast on 27th December 2007, Another famous person was Zahid Khaqan Abbasi who was son of Khaqan Abbasi a minster and senior army general and brother of Shahid Khaqan Abbasi now a minister and former PIA chief who survived after a brain injury in 1988 but could not improve and died almost after 14 years, I am sending you my story, It is a sad story but we need special assistance because we are doing our best and there is success in this hard and normally no cure case, Story of a father of a Pakistani patients Jawad Pasha 26 with traumatic brain injury locked in syndrome am not good at computer and not good in English so i am sorry if you found it weak. I am father of 3 sons and a daughter. One of my son is working with me rest 2 were studying in university.One named Jawad Pasha when he was 23 found injured at one hospital with some unknown accident on 13th September 2004 and since than he is totally disable like locked in syndrome.we are helpless here even you can find no website here on the subject of traumatic brain injury. he was under treatment since than at the 2 top hospitals here and visited almost all famous hospitals here at Pakistan, brought him twice to Singapore SGH but only loss because they have no specialty regarding T B I. my son is fully wise smiles and laughs when listen such talks tries to move a little his hand or foot , identify and remember people and voices working hard since than without guidance. He is with good heath till now. Now after a long time a Pakistani doctor at USA is helping and guiding me, but having other tragedies meanwhile. My youngest son Ubaid Pasha who was 23 was kidnapped for ransom on 5th March2007,the same day on which he completed his computer degree and kidnappers received the ransom but they killed him and his body was found after arrest of the kidnappers and one of killers was the person who supplied medical equipment for my son Jawad. My son was a Hope for me and his elder disable brother ,and me going old now,Meanwhile Land mafia power full here found these events fit to capture my business they torched threatened me and my family and beaten my son working with me, what to do? It is 4th year of whole night awakening with my son.I don't know why god selected me for this all but thanks to god he gave me courage to fight. Anwer Kamal Pasha; Mail to Share me; ,jawadpasha82@gmail.com

29.A group of doctors inspeted Jawad Pasha on 19th July 2008 at Shafa International Hospital Islamabad Pakistan and told that he is with a diffuse axonal injury and not locked in syndrome.Although all appearence was like a locked in syndrome and family was having no knoweldge..Now new Improvements;I am very happy to tell you that now i feel that we are going to get some improvements and it is going to be happen without any proper guidance,treatment or advise only by grace of god and support by family and friends of the patient my son Jawad Pasha and friends of my murdered son Ubaid Pasha.There are visible signs of effort of the patient to regain his command on different body parts and a visible improvement.We still need support in different fields as Exercise machines for such patients, wheel chair of special description, Speech therapy guidance,Swallowing technology guidance,Bowl and Urine control guidance,Physiotherapy guidance because physiotherapist here are total unaware about such patients,etc. We shall be happy to join such a work done their for such patients.We can afford traveling and some other expenses in this regard. We can also stay for a long anywhere for rehab or treatment.

we are thankful to Dr Carina Eksteen of Pretoria for guiding us when she visited Pakistan in connections with help to Earth quake victims.We are also
thank full to The Pakistan Autism Meetup Group Karachi who took care of us.We are specaily thank full to Dr Saad Mustafa who is doing his best for his Pakistani brother.We are thankfull to all sharing us.E mail me at pashaanw@gmail.com

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[kewlcatkez]

Hi Anwer Pasha,

Firstly, I am sorry that you had to find us due to these circumstances. There is a wealth of knowledge at the Shepherd Center website HERE as well as many others. I link to Shepherd as it has experience of an ongoing Catastrophic Care program into Brain injury, Spinal cord injury and Dual injuries which can be viewed fromthe internet for all.. The link I have sent has many information sheets. it may be worth emailing someone from the Traumatic/acquired Brain injury center there to ask for their support and direction to assist or confirm what those caring for your son are doing.

I wish you, your son and family the best and hope that you will see vast improvement in him. I am so sorry to hear of your losses, devastation and heart ache.. and pray for Healing for your country, my country and the world. Let us know how he is doing..

Take care,

K

This post has been edited by kewlcatkez: 22 July 2008 - 09:23 PM

[azx43]

Hi Anwer Pasha
I am very sorry to hear about your troubles, but glad that you found this site. This website is unbeatable for support and talking to people who really understand! I am a survivor of TBI myself, and I know that one of many problems to be overcome with head injury in loneliness. I was 16 when I had a cerebral hemorrage, and that time (11 yrs ago) there were relatively few people who survived what I had, and even fewer who made it through cognitively unimpaired- and that was in the US! No one knew what to do with me, but with the advances in medical technology cases like mine are much more common. Anyway, websites like this one are invaluable for the support and friendship they offer.

Today I am 27, and live a fairly normal life. I can walk with crutches or other assistance, and I use a lightweight manual wheelchair for distances. I have issues with balance, not strength. I work in outdoor education, and also am a graduate student. I love to read, write, laugh, dance, be with friends, be outdoors, do photography, and generally live life! I camp out, kayak, hike, and am on the local K9 drill team. Basically there are no limits to what you can do, you just have to think differently.

I am not telling you any of this to make myself look extra good, or something, but to try and say that there is hope for you and Jawad. It already has been and will continue to be a long time for you both, but try not to lose sight of the end of it. I am so glad that you found some guidance. I did my own rehab at the Barrow Neurological Institute in Phoenix, AZ- they are experts in treating neurological injuries. There is a lot of information out there on TBI- people who survive such are much more common now, and so there is much more awareness.


Best of luck to you!!

[StellaLAtella]

I am so sorry to hear of your tragic circumstances. There's a great facility in Atlanta, GA (USA) It's called The Shepherd Spinal Center.
You can visit their site at:


WWW.SHEPHERD.ORG

I wish you luck,
Stella

[Anwer Pasha]

Thanks for all of you.We believe in the effect of pray .Please keep praying for Jawad Pasha.He is improving by grace of god.He is awakening.It may take weeks or months or years but it looks nearby.Please read the Story of Terri Wallis of Arkansas (USA) A Persistent Vegetative (Now Called Minimally Conscious) State Like Jawad Pasha of Pakistan at www.theterrywallisfund.org/history
I have read this story yesterday and those who are reading story of Jawad Pasha since last three months can understand now how correct we are ?

We still nead gauidance.It is very important.It is changing the history of brain injury but we are looking to the some specialists like the physiotherapy deptt of University of Pretoria.

[Anwer Pasha]

Jawad Pasha is improving. He is now like a fully conscious or aware,Perhaps he was conscious sins the accident but that was not visible due to severeness of injury .He is still without motor function and many respects he is still like a persistent vegetative state or minimally conscious state but there is a difference of discovery of his consciousness. Now we are in more need of Gauidance by the specialist of rehab.Main question is What to do next. That all happening is by grace of God and we are hopefull for some better.
(See Jawad Pasha of Pakistan at a birthday of his nephew last month)

[Anwer Pasha]

He is more wonderful. Now responds for everything but still without motor function.We are further successful in controling his fits/seizure by using simple technic of diverting his attention to somewhere else at the time when we feel that the fits are starting, then we try to know the reason of fits .That may be pain.huger ,thirst,feeling cold or hot or any other pscycological reason. He is quite healthy and looks hopeful. We have an other PVS at Pishin near Quetta Pakistan. He is a young boy or 16 years . His name is Muhammad Hussain Kakar. He is a PVS since last 10 months.We are applying all these technics with him and by grace of God he has started some responce. Another very important point for caregivers is that the advice by doctors for dnanging the side in every 2-3 hours is only for the purpose to avoid pressure sores but it is very necessary to move the arms and legs a little after evey 15-20 minutes to keep the blood circulation proper for these type of patients who can not do it their self. We are now in needs of some advice from rehab specialists and some exercise machines suitable for enhance the movemrnt.