9 replies to this topic

[purple_faeries]

hi there



I'm hoping that someone could help me. I'm a para although with no specific diagnosis (it is neurological not accident), at the moment my husband is doing ISC on me (using hydrosil discreet size 10 if it helps because I am unable to do it for myself because of lack of control etc of my hands and arms, and he is unable to do it while I am wearing trousers and in my wheelchair (I have a tilt and recline one) so I am having to wear skirts/dresses all the time. Don't get me wrong, I prefer wearing skirts and dresses to trousers, but it does get a bit annoying when i can't wear them at all and it's getting cold lol.

At the moment when i am in my chair, he tilts me and then reclines me all the way, and then positions my legs so that they are outside the leg rests leaning on them to try and get them as open as possible. That's fine while wearing a skirt but then problems occur with trousers and the like because I am unable to lift myself up to help him pull them down or something.

What I am basically wondering is if anybody out there has had the same trouble as me and can offer advice and help as to what to do. I have tried altering the trousers by unstitching the seam and putting velcro there but that doesn't really help either, I would have to make it so long that it would be really visible from me being sat down.

Please help if you can, I would really appreciate it!

Thank you

Purple

[coolbreeze]

Hi purple_faeries

Welcome,

I not sure if this will help, but I wear short pants for easy access and sweat pants when it's cold. I try to wear cotton or nylon more often then denim.

It's funny coz i'm male and wondered about men skirt (kilt) anything to help me feel sexy oops imean self dress easy. lol

Having a sci is challenge when it comes to self urination and dressing ourself.

Over time we will find ways to deal with these things better.

But for now you are in the right place this (website) members here has knowlegde,tips,personal experience and stories that we all share that will help out alot and encourage even more.

good luck.


breezy c6 quad.

[Ches]

Cant you just wear a leg bag on the days you want to wear jeans?

[purple_faeries]

ah i would if i had an indwelling cath i am hoping to be able to have an SPC soon but still am looking at several months i think

Purple

[In The Wind]

Have you tried a brace for your hands? Something to help with fingers? I know that it was tough for me to get used to cathing but I can't image trying to do it female...Good luck and best wishes

[Ches]

You dont need a SPS to wear a leg bag.. I in/out cath ( Im a yr post and I still dont know the correct term for that) all you need is a certain type of cath, one that will stay in place.

Did you know such a thing existed?

[purple_faeries]

thank you for your posts, they are really helpful. I might ask about braces for my hands, but not having to do it at all would be better lol

The other problem that i have got is that i spasm an awful lot in my legs in particular, which again makes it hard to cath so i end up having to wear pads most of the time which i have been trying to get rid of, and they make my pressure sores worse and of course my district nurses are absolutely crap lol, nothing seems to be going right

Thank you

Purple

[eleanorigby]

I think what Ches is talking about is just a regular indwelling cath which is quite different from a SPC. An indwelling is inserted into the bladder through the urethra and then held in place with a balloon which is filled once it's in the bladder. You can attach it to a leg bag or, as I prefer, put a plug on it and just carry an empty water bottle in your bag that you can empty it into when you have to pee. I recommended the plug if you know when you have to urinate because it will keep your bladder from shrinking (and prevent embaressing leg bag problems!). You can wear one of these until you get an SPC. The other nice thing is no surgery and you can take it out no hassle whenever you want.

Edited by eleanorigby, 10 July 2008 - 04:32 AM.

[Jackiefff]

eleanorigby, on Jul 9 2008, 11:31 PM, said:

I think what Ches is talking about is just a regular indwelling cath which is quite different from a SPC. An indwelling is inserted into the bladder through the urethra and then held in place with a balloon which is filled once it's in the bladder. You can attach it to a leg bag or, as I prefer, put a plug on it and just carry an empty water bottle in your bag that you can empty it into when you have to pee. I recommended the plug if you know when you have to urinate because it will keep your bladder from shrinking (and prevent embaressing leg bag problems!). You can wear one of these until you get an SPC. The other nice thing is no surgery and you can take it out no hassle whenever you want.

hey sorry just wondering how you put a plug in the leg bag... this would b awesome for me.. although i dont know when i have to urinate.. although i could just emmpty it frequently. i am sick of not being able to wear anything but jeans when i want to drink and have to wear a leg bag.. do you just use a regular leg bag and foley?

[eleanorigby]

Jackiefff, on Jul 9 2008, 09:57 PM, said:

eleanorigby, on Jul 9 2008, 11:31 PM, said:

I think what Ches is talking about is just a regular indwelling cath which is quite different from a SPC. An indwelling is inserted into the bladder through the urethra and then held in place with a balloon which is filled once it's in the bladder. You can attach it to a leg bag or, as I prefer, put a plug on it and just carry an empty water bottle in your bag that you can empty it into when you have to pee. I recommended the plug if you know when you have to urinate because it will keep your bladder from shrinking (and prevent embaressing leg bag problems!). You can wear one of these until you get an SPC. The other nice thing is no surgery and you can take it out no hassle whenever you want.

hey sorry just wondering how you put a plug in the leg bag... this would b awesome for me.. although i dont know when i have to urinate.. although i could just emmpty it frequently. i am sick of not being able to wear anything but jeans when i want to drink and have to wear a leg bag.. do you just use a regular leg bag and foley?

There's no leg bag at all. I wear a foley cath and at he end of it, I just insert a little plug that I can pull out when I want to pee. I just tuck the whole thing in my underwear and no ones the wiser. It's dead useful and a little more discreet than a leg bag. Here's a link to the plugs. It says plug and cap, but the "cap" is just to keep the plug sterile till you use it.

http://www.shop.com/...g1-k36-st.shtml