16 replies to this topic

[reaven85]

My bf is a para T8-T12 I say he is complete he says he is not? We dont know? But while at the hospital He had to be cathed. If he wasnt then I dont know? He would explode? lol But then out of no where he started peeing. Anytime fluid went inhis body. It came out. He was like one of those babydolls that pee. Its been 3 months since the accident. Yesterday we were out all day runnin around (sorry he was rollin) He said hey lets go home I need tobe changed ive been in the same diaper since this morning. so I said ok. We came home and like 2 hours later he gets in bed. And nothing? He hadnt peed? He was dry as a whistle. We were concerned but thought lets see what happens. about a hour or two later he was soaked! So we were relieved. We left again. We went to the mall and went shopping we were gone about 4 hours. Came home he rolled around about 2 hours and then got in bed. AGAIN! NOTHING?? And a half hour later bam he is soaked? We dont know whats goin on but he is still doin it today? Oh and today he is sick. He has a headcold or something.

Now to his bowels! He wont go at all. He doesnt ever have accidents. Bottom line. He doesnt go unless I tell him to. I do it for him right now only because he wears a kydex which makes it hard for him to reach back. But the only time he has a bm is when I give him a suppository. He lays in bed I do my thing then we watch tv or makeout...lol or I get on the comp. about 20 minutes later he is done. I get up and clean up and we go back to doing whatever.

My question is will it always be like this? Like whats up with his bladder? Oh yeah this is a HUGE question that we cant find info on. At night he wears a condem cath. While it is on him he must lay on his back. If he rolls it comes off. Ok he would kill me for saying this. But it seems as though his penis disappears? We want him to be able to wear one all the time. But when he sits up his penis hides? LOL We joke about t but it drives us nuts! I thought that we should try like a smaller one cause it would be tighter? That was funny! I ordered 2 of each smaller size the 31m 28m and i think it was 21m? Yeah NO that didnt work the 31m were ok but they didnt stay on either? the other ones didnt even fit. we laughed it looked funny. We have tried taping them on. we tried ducktape even! but nadda.

Come on men give me some insight into your penis! Why does it disappear? It like sucks into his body or something? I dont have one so I dont know how they work? Does anyone have any ideas!?

[evilmac64]

mine to look down and its gone was told at hosp. its a normal thing as for peeing i would self cath every 4 hrs and if icould stay dry what do you have to loose

[reaven85]

evilmac64, on Aug 6 2008, 06:40 PM, said:

mine to look down and its gone was told at hosp. its a normal thing as for peeing i would self cath every 4 hrs and if icould stay dry what do you have to loose

Yeah but he doesn't have to cath? It comes out on its own.

[china]

don't know what onesyour using but, have you tried self adhesive one's like these:

http://www.rocm.com/products.php?id=8

they are made by Coloplast but, the propper link location on their site is down

http://www.ucc.colop...12573440030FEAC

Edited by china, 07 August 2008 - 05:17 PM.

[qbounce]

Reaven,
It comes out on its own when his bladder spasms, probably when it's triggered to feel full. Because it doesn't know like it used to when that is, it could be any time. That's why diapers are dry sometimes and wet others. If he would Intermittant Cath (IC), it takes away the guess work about WHEN it's going to come out. Also, no more diapers, and that's the biggest plus!!

Also, when he FIRST left the hosp, the indwelling catheter trained the Urethra to stay open because the sphincter muscle wasn't being used. So, when he drank anything in the bginning, it would just run right out. But since then his muscle has tightened up again.

Anyway, if he IC's no more leg bags, diapers, or leaks. But, you may still want to also look into bladder spasm medication if leaks occur. It's WORTH it.

Bowels can eventually be done on the toilet. I recommend every other day because it saves time not having to worry in between days. Then you'll have more make out time with nothing slowing you down in between!

[edlee]

If you are leaking after 6 hours,, then cath sooner,, if its necessary to cath every hour to stay dry, then do it. After all, staying dry is the goal.

I use a condom cath every day,,, with generally no problems,,, I do use a bit of tape wrapped around the shaft, (as a bit of security), and,,, yes,,, my keister sometimes tries to hide,, but it still stays adherred. I do use a "prep" wipe before putting the cath on, and I do believe it helps.

As for the bowel routine,,, it sounds like it's going pretty well. I wouldn't let it go more than three days, tho.

Sounds to me like he's lucky to have you around,,,,just crack the whip on him a bit and he'll get the handle on the how often to cath.

For us crippled guys,,, routine is the key.....Stay regular---stay dry!!!
ed

[reaven85]

yes We use self adhesive condom caths but they dont stay on unless he is laying on his back. we are trying find out if there is anything that would keep them on? tape doesnt work. At the hospital when we were first introduced to condem caths the nurse glued it on....She did not know what she was doing I guess cause when we went to remove it. OMG i felt so bad for him and was so happy that he could not feel his penis because that had to hurt! It took 3 nurses and about a half hour to remove it.

[china]

Get the self adhsive ones, when you put them on get him to lay down with his legs apart if you can.DON'T use any oil in the bath or they wont stick, his bits should stay in view,make sure he is compleatly dry and they will work. my partner uses them with no problems.My partner used the tape ones when he first had nis accident as that was all they did then, as soon as the self adhesive ones came out he started using them and hasn't looked back.



Good luck.

Edited by china, 07 August 2008 - 08:59 PM.

[C Herod]

It sounds to me like he needs to see a urologist. He is probably having bladder spasms. They have meds for this. My husband has so many bladder issues due to this. He does need to be cathing i think. There is really no reason he needs to be wearing diapers. My husband doesn't. His bowels have to be done with suppositories. Are you aware of digital stimulation. Don't let it go to long we do it every other day. I think it would be better for him to cath than be wearing diapers especially if there is no bowel leaking. My husband hated diapers and I have to admit it wasn't easy seeing him in them.


Wearing diapers will eventually lead to rashes and all sorts of things. Oh man i so remember being in your position. It really sounds like you need a lot of info. We were the same way. I bet he needs a smaller cath. My husband wears the mediums, or the best fit is the interm. size. Make sure his thing is very clean i always wash it off before we put it on especially if we have sex. If not it will slip off. Sorry bit to much info., but its true. It will stick better if you can get it erect and then put it on, but it should stay on even if its not erect. If you have a bedside bag make sure its not pulling on it or anything. This can cause the bottom of the cath to kinda like you say go over the top.


I hope you have the ones that are self stick right on. There no other piece like a sticky thing that goes or the bottom is there. Those don't work worth a flip. These are clear self adhesive condom caths. This is what we use at night and they rarely come off. My husband only wears one with a leg bad if we go somewhere and he doesnt think he can make to a bathroom by himself. He does have the occasional accident, but not very often.

Edited by C Herod, 07 August 2008 - 09:36 PM.

[reaven85]

I totally understand what everyone is saying...I dont think I worded it right or something. Ok He does not have to be cathed. Not at all. Nothing is medically wrong. The doctors say that his bladder is fine. What IS wrong is that he is paralyzed...lol He can't feel when he needs to go. So when his bladder wants to it goes. Now there isn't anything we can do for that? We use self adhesive condom caths. They work great but only while laying on his back. If he was to get up or roll over they come off? We did try smaller ones...hahahaha They do not fit they only roll down far enough to cover the head.

I tried to put them on while he was erect..Someone told me it was easier and they stayed on better. The problem with that is they dont fit. They are to small when he his erect? Ok when I put them on him erect they roll back up? They dont stay unrolled? We even tried bigger ones...lol I told him hahaha yeah right. So I guess there is nothing we can do to get them to stay on all the time right?

Oh and I clean it everytime. The whole sex part I know nothing about cause we still havent been able to. Its been 3 months....

[evilmac64]

if you cath before bladder is full and springs a leak you might avoid wet diapers. nothing wrong with my bladder except i cant feel it. and i dont wear diapers and glad

[Hapahowlee]

My former roommate who is a C5 wore condom caths. I took care of him in addition to working a full-time day job. Anyway, there is glue you can use that will keep the condom cath on for at least 2 days. They tend to loosen after that. When I needed to put another on, I used alcohol wipes to gently pull the old one off. It may help to make sure he doesn't have a lot of hair "Downstairs" that's probably what hurts the most in taking those off. I took care of him for a few years and that's all he used was the condom cath and adhesive which comes in a bottle like rubber cement (don't use this) and it came with a brush attached to the lid and the wipes come in little packages like the antibacterial wipes and you just pull up and wipe, pull up and wipe until it finally releases. I also agree you should check with a urologist to see if this is the best option for him as far as emptying his bladder. My husband doesn't cath he just uses a urinal, but he did have a bout with AD (Autonomic Dysreflexia) in 1992 b/c he wasn't voiding all the way. Something you should read up on b/c this is a very serious condition that could happen if there is trauma below the level of injury, even an ingrown toenail or sometimes sex can trigger AD. Read up on it so you know the signs.

[russ1]

Hapahowlee, on Aug 8 2008, 01:01 AM, said:

but he did have a bout with AD (Autonomic Dysreflexia) in 1992 b/c he wasn't voiding all the way. Something you should read up on b/c this is a very serious condition that could happen if there is trauma below the level of injury, even an ingrown toenail or sometimes sex can trigger AD. Read up on it so you know the signs.

The OP's boyfriend is T8 - T12 and as such shouldn't suffer from AD, it only affects those with breaks above T6

[JT80]

reaven85, on Aug 7 2008, 09:56 PM, said:

I totally understand what everyone is saying...I dont think I worded it right or something. Ok He does not have to be cathed. Not at all. Nothing is medically wrong. The doctors say that his bladder is fine. What IS wrong is that he is paralyzed...lol He can't feel when he needs to go. So when his bladder wants to it goes. Now there isn't anything we can do for that? We use self adhesive condom caths. They work great but only while laying on his back. If he was to get up or roll over they come off? We did try smaller ones...hahahaha They do not fit they only roll down far enough to cover the head.

I tried to put them on while he was erect..Someone told me it was easier and they stayed on better. The problem with that is they dont fit. They are to small when he his erect? Ok when I put them on him erect they roll back up? They dont stay unrolled? We even tried bigger ones...lol I told him hahaha yeah right. So I guess there is nothing we can do to get them to stay on all the time right?

Oh and I clean it everytime. The whole sex part I know nothing about cause we still havent been able to. Its been 3 months....

this is in no way meant to be patronising, but i think you, and more specifically your b/f need to go and chat to either a urologist or a doc that knows all things spinal. it seems you are both not necessarily up to speed biologically - as the large majority of sci's aren't at the very start. its not easy and can be daunting but your b/f needs to be a expert in his specific sci. there are solutions to all your concerns. if the doc you see isn't helpful and doesn't say more than 'his bladder is fine' then see another one.
maybe even direct him here too, it might be helpful, although maybe edit the disappearing dick bits first...
good luck

[C Herod]

I agree you really need to speak with a SCI specialist or something. My husband can even feel when he is about to be on his self and rolls and caths. Only has a minute to cath or he will pee on his self he has no control over it. We understand that he is paralized and can't feel when he needs to go. I'm sorry but i totaly cracked up when i read that. The reason for cathing is so you can empty your bladder and don't have to worry about peeing on yourself or wearing diapers.

Some people cath because that can't pee at all so they have to so there bladder doesn't bust. Some cath so they don't pee all over themselves even if they can pee, but just don't know when there going to. I mean no one wants to be wearing diapers forever right unless they have. I'm not a dr., but I think he really should be cathing.

As far as the catheders just buy all the sizes and find which one is best. We use the mediums the smalls are very small and definetly don't work. Intermediate is the best fitting. They do have wipes that help them stick better.

Edited by C Herod, 08 August 2008 - 02:13 PM.

[reaven85]

Ok i made an appointment with the urologist. he wont be seen until october. Thank you for all the advice. Where would I buy the glue?

[C Herod]

reaven85, on Aug 8 2008, 05:31 PM, said:

Ok i made an appointment with the urologist. he wont be seen until october. Thank you for all the advice. Where would I buy the glue?

I order all our supplies from allegromedical.com. They deliver the usually the next day right to your door. I love it. Just go to incontinence supplies i believe.