46 replies to this topic

[ems]

Another thing.....how can my oestery standing frame cost stoke £1200!? How much was the Beech wood?!
These companies make an absolute packet.
True story.. 2 year out of stoke.. I rang up to order a hip belt for my standing frame as three of the hole had formed a uni-hole in the leather. No problem they said, will be sent out in one week. Fari enough, exactly on time a huge DHL lorry turned up on my front door step and proceded to take out the hugest box ... a new standing frame!!!!!!!!! I phoned stoke keeping the guy around so he could take the darn thing back..and stoke told me I hmight as well accept it as any returns, they would still have to pay for.. and it was £1200... all custom made.. No returns unless faulty!!!!
I felt so guilty, as I only wanted a new strap!!!!

It ended up in the office, and a few months later I was on the FEMs trials. I ended up sending it to a special needs school who couldnt afford a new standing frames for kids, as the kids are issued one at home.. but spend most of the time at school... I am pleased that they ended up both of them, at least it ended up to be a nice result for a place like that who was to fundraise to get equipment.

[kDd]

Kim,

Every Doctor, Physiotherapist and OT I've spoken to harass me about whether I've been standing regularly. Surely their advice isn't based on superstition.

Personally, standing reduces my spasms significantly and stretches places I can't stretch well myself. Not sure about the rest, but that's reason enough for me.

There's also the Doggystyle factor. Think about it.


Peace,

kDd

[megatrig]

grrrrrrrrrrrrrr.................

being nagged by doctors, etc, etc does NOT!! mean they are right!

How many times on here and PERSONALLY have we seen conflicting points of view!

I do agree with it stretches yes and can reduce spasm!!

BUT!!

We are all individuals still and each person reacts differently!

[kDd]

"Significantly higher BMD in the lower extremeties". What's important to note about the study is it's only over a two year period.

I wonder how big of a difference there would be between the groups after 20 years in a chair?

Anyway, the Doggystyle factor trumps any medical benefits. Irrefutable.




kDd

[andinoah]

My fiance uses his standing frame and he is a quad. It helps stretch his bowels and great for serculation. Plus I get to see him on a whole new level, gosh he's really tall! When he hasnt used it for a while and then he does he gets real light headed and I have to bring him back down. It is a good thing to use.

[curbyi]

Any one in the UK had any PCT/NHS funding for a standing frame?

[Andre Cremer]

i got a standing frame when i got out of hospital,and i spent hours on it dayly. i know it helps because im walking now. i can only say good things about it. I truly believe people who are able to use a frame can only benifit from it. i remember the first time i stood again after my sci, and the mental boost it gave me.

[ems]

Quote

i know it helps because im walking now.

hmmmmmm ;)

curbyi, on Oct 28 2008, 01:35 PM, said:

Any one in the UK had any PCT/NHS funding for a standing frame?

Yup, your spinal unit should issue you with one, no questions asked.

Edited by ems, 28 October 2008 - 03:44 PM.

[kimgilaby]

Wow so many different views on it . I want to thank everyone for there opinions. I never even thought about the standing frame in relation to the spasms. They are horrible and this is a month afterhaving theBotox done. We have an appointment with the Dr tomarrow so I am going to bring up the idea of getting a standing frame. The only way his insurance will pay for one is if the Dr deems it medically benefitial. So wish us luck.

[megatrig]

ems, on Oct 28 2008, 04:43 PM, said:

Quote

i know it helps because im walking now.

hmmmmmm ;)

curbyi, on Oct 28 2008, 01:35 PM, said:

Any one in the UK had any PCT/NHS funding for a standing frame?

Yup, your spinal unit should issue you with one, no questions asked.

Ditto to both

I got mine 20 years ago on leaving Oswestry

and if I'm not mistaken its called an "Oswestry" standing frame as they designed it??

kimgilaby, on Oct 28 2008, 10:45 PM, said:

Wow so many different views on it . I want to thank everyone for there opinions. I never even thought about the standing frame in relation to the spasms. They are horrible and this is a month afterhaving theBotox done. We have an appointment with the Dr tomarrow so I am going to bring up the idea of getting a standing frame. The only way his insurance will pay for one is if the Dr deems it medically benefitial. So wish us luck.

sorts my spasm out great! but for an hour then it returns!

Back to all of us are individuals and react differently!

Definately can't hurt and is worth trying as its totally non invasive!

[pjcstoke]

Standing is good for you both physically and pschologically - it's good to rmeber how tall you actually are.

There are different ways you can do it and different pieces of equipment. I use an Easystand for jsut standing as its simple to getin and out of and a good posture http://www.easystand.com/

I also use a Total gymm for wight bearing whilst exercising - this has come thought the Standing Start programme http://www.standingstart.org/ and originally though Project walk in the USA http://www.projectwalk.org/

Hope this helps

Peter

[jackiek]

Hello everyone,
I am a little biased because I work for a standing frame company called EasyStand. Hopefully I am welcome here. We have done an extensive amount of work collecting all the research studies on standing. Here is a list of them, sorted by various benefits/diagnoses. http://www.easystand...ts/research.cfm

A well-known physical therapist, Ginny Paleg, did her doctorate dissertation on standing, and published it as a webinar on our website. It is called Evidence Based Standing, its free, and is two half-hour videos you can view on your computer. I would also suggest taking a look at her PDF resource called "Synthesized Literature Review of Supported Standing". This is a compilation of all her research on standing over the years, sorted by different outcomes. Ginny's research and webinar is on http://www.easystand.com/ginny

And I guess, on top of that, you can read stories from many of our customers, who shared their stories about how standing helped them specifically on http://www.easystand.com/stories

Hope that helps, you can make your own decision from there.
Jackie

[ianz]

THE VIBRATING STANDING FRAME.

Has anyone looked into vibration and bone density yet? There is some interesting information out there.

Now that would be a useful standing frame!

[Edinburgh Colin]

ianz, on 22 January 2012 - 06:23 AM, said:

THE VIBRATING STANDING FRAME.

Has anyone looked into vibration and bone density yet? There is some interesting information out there.

Now that would be a useful standing frame!

Good point, the vibrating static exercises that are popping up in gym's work on the principle of improved blood flow and like non impact exercise or something.
Could be an angle there for sure!
EC

[ianz]

Bone density is definately improved using vibration, this has been proved in mice. Shame they had to grind them up to prove it though.
I had not thought of circulation issues but hey the more the merrier.

Muscle stretching is important in standing, vibrating or not. My toes are going South these days and a good stretch on the calves will help with transfers. I am managing about 20mins every 6 months or so and am totally ashamed to admit it. I will try harder as I know there are many benefits.

Also, for those incompletes out there with a little diy skills: I cut a bike in half, stuck a spare car seat to it and can peddle till I'm out of breath. It's a great feeling to pump those legs.

[step by step]

kimgilaby, on 04 September 2008 - 09:36 PM, said:

Hi can any of yu share the benefits of using a standing frame outside of PT or OT. I know it helps with pressure relief. But I have heard it also helps with bladder and bowel issues is this true?

Hi, is very important for all the SCI patients to keep the motility (own movements of organs). Is important to fulfil the standing due to the diverse benefits that this one carries, as for example:

- To improve respiratory function.
- To improve circulatory system.
- To anticipate muscular contraction.
- To keep joint balance.
- To keep the bones density.
- This position helps the bowel movements to favoring a better intestinal evacuation.

Physiotherapist Fundación Step by Step.

[dreamerr]

I love to learn and even though I don't need either the bike or the frame this is a fascinating topic. I would have thought a stander would help with bone density but from what you wrote that alone is not going to help so this with like all other stuff needs a multi-task approach.