[Joed]

This is basically a herniation of the spinal dura, where a pouch of spinal fluid is pushed outside of the normal canal. Has anyone else been told they have one of these? And if so, what were you told to do about it?

I already have a 'true' meningomyelocele, where the cord itself it pushed out of the spinal canal...thus, the spina-bifida. But I have also recently developed a bulge, about 4in. or more in diameter, located above that, on my low/mid back. It's very painful to touch and when I cough, etc.

My neurosurgeon diagnosed it, but didn't seem concerned at all with it, even non-chalant, but my pain doctor was quite upset that it wasn't being treated. He has recommended binding it in hopes that it may heal to a certain degree...although it will always remain vulnerable. He said that a simple insect bite in that spot could potentially be life-threatening, and at the very least it should be protected with something. But I guess I'm left to myself to find out what that 'something' should be.

[AHolland]

Sorry, no I have not heard of this condition.

[Joed]

I thought I'd let you all know what I did about this, in case someone else comes along with the same questions I had.

I purchased a Back Relief Belt from a TV spot. It can be inflated to the desired pressure, which is great for me since the belt itself will not cinch up tight enough...I'm more child-size than adult. There's a valve to release the air when needed. It also has a small pouch built in for ice or heat packs. It's not noticeable under your clothes, but can be worn over clothing if you wanted.

So far, I have noticed a slight reduction in the size of the bulge, but I'm wearing the belt 24/7, except for showering, so I don't know if it would return to its original size within an hour if I took it off or not.

It has reduced the pain I was feeling when coughing or sneezing, etc., as it provides a good solid counter-pressure. I have to deflate it when sitting in any seat with a lumbar support built in though, because it's just too much pressure on that spot.

Now I've got so many things to strap onto my body...it takes me an hour just to go out the door.