Posted 21 October 2008 - 10:23 AM
The more I read about this situation the more upset I feel.
We all understand the depression and upset felt during the initial stages of injury by the injured person and their family, their wonderful big physical son is no more. Its tough.
But he went to rehab at arguably the best rehab place in the UK. A place where the canteen has free internet access set up, you can have mobiles on the ward, where there are professionals and volunteers trained in all sorts of rehab techniques. Is something missing in our rehab? Something required locally when you get home?
I remember the joy of coming home from hospital, but only to find that honeymoon period short lived as I slammed into a brick wall of red tape, bad carers and being bullied around by so called professional staff who were far from understanding. I was sent home from hospital thinking everything would be fine, only to find a series of No, No, No's. I cried myself to sleep every night for 2 years, I was obviously very depressed, but no one was there to help. I'm sure many of us were the same.
One also has to question the perceived viewpoint of a disabled life by both the general community and also the 'rugby' community. Everyone who plays rugby seriously should know of the implications of spinal injuries, many caused by scrums, and this lad was a hooker. I'm not saying just because he was a hooker he should expect injury like ours, just that he did know it was a possibility. If this lad felt so alienated by being in a chair, I think the rugby community at club level ought to shake themselves up a bit, and make themselves a lot more pro-active with the disability their sport causes. I don't just mean raising money for chairs the NHS won't fund, but maybe inclusion not awkwardness within their club activities. And yes, there is awkwardness.
OK, the RFU have great facilities for disabled seating at the premier stadium Twickenham, but this is not the same across the country. The Millenium stadium at Cardiff has incredibly limited and really quite poor access for matches and pop concerts in their grounds. Club level, well I know my local club house is up a flight of stairs, totally inaccesible.
I only live half an hour away from where he did, and feel bad that I couldn't even have the opportunity show his parents that their is a life with crap tetraplegia. Let them see that a tetra can do a degree, have a career, have a great partner, have two wonderful kids, travel, have friends and be part of society - all post injury. If someone is determined to do so that is, and so far everyone has commented what a determined young man he was.
They bravely gave their son the right to die, but how hard did they look before this choice was taken? Did they come here? Did they go to Stoke? Did they see a specialist shrink? Did they get him involved with quad rugby? Did they get him on a back up course? Did they get him drinking with russ or megatrig?
Spasm and incontinence have been listed as additional unacceptable problems ...... thats not enough is it?
Also his Mum has been quoted as saying ....
"I always stop and think that if every family affected by spinal injury in the past 20 years had raised money for research, we might be five years more advanced and it may have made a difference to Dan.”
One looks at that statement as a very hurt Mum, but also a Mum blaming us, the spinal injured community, for not getting up off our arses to help cure ourselves. Its a strong statement.
One also has to think that he went to Switzerland so that his parents 'could' be with him when he died. Whatever reason he did it for, I think we shouldnt let it pass lightly and we ought to look at what can be done to improve ours and new injuries lives.
BTW I feel I am able to comment. I live in the society he does, I was injured at a similar age, I am a higher injury.
I xxx