8 replies to this topic

[AHolland]

Sorry I ca'nt point you to the sites that talk all about it. A couple of years back I was watching what was going on with him. In the end there was enough questionable data and results that I decided to no longer follow it. There is another doctor (Wise) that had also questioned the methods that were used.

Like a lot of second or third world studies there were great results being extolled, but little factual research to back it up. I remember there being one girl who was in a similar situation to me. She had been a para with a big part of her spinal cord missing..inches. She went and did this treatment and 6 months later she could stand. 6 months later she was walking without assistance. I guess I am a bit sceptical of results like that. Now years later, we are still hearing about it, but still don't have any real factual research to back it up. If it worked so well, then we would be seeing dozens of people that had been cured.

I am like the rest of you who really hope and even believe that one day a cure will be had for our condition. My own belief is that it will be another 10 years before any meaningfull results will start affecting us. Research like that in California (3 billion for sten cell research), will take years just to decide where and whom will get the money. From there years more to get priliminary results. Years more to get through clinical trials. Finally years more to get refined and hit the streets,

We are living on the edge of great things, but we must be cautious of getting too hooked on the few, unexplained successes out there. I continue to hope for myself and others that the future holds promise. Still, I have been here a while and know it will take a while longer. Some of the old dogs here have probably heard it over and over to the point of boredom. Don't give up hope, but be realistic.

[irina]

Myla, on Dec 21 2005, 10:17 PM, said:

From what I understand about this surgery is that it is experimental and while Dr. Lima has had some moderate success with some patients, there are patients who have lost some sensation and/or movement because of it. Also, it is expensive and requieres a long stay in rehab (6months) afterwards. That said, I've read trials either have started or will start soon in North America so who knows. My husband, Brett, is injured at c6 and says he would take this surgery if it only gives him his hands and upper body back. I worry about his safety and I can't handle the possibility of him being more injured than he already is. If any of this is inaccurate, I'm sorry, I get a lot of my info on-line . . . Myla

Based on what i heard, this surgery is performed only on teen agers ages 20 and below are the most successful. if you read his stories, you will see that most of the people who had surgeries are below 20. Let me know please, if i got wrong information.
Irina

[jass1]

HI my name is jassim al thani from qatar i found this info few months a go hospatal and rehab

hospital Egas Moniz

Dr. Carlos Lima

Hospital "Egas Moniz
Rua da Junqueira 126
Lisabon
phone NO: +351 1 21-365-0000

Centro de Medicina de Reabilitaç?o da Regi?o Centro - Rovisco Pais
Telephone: 00351 231 440900
Fax: 00351 231 441064

e-mail: cmrrc@roviscopais.min-saude.pt

[DaveP]

Any one coming to Portugal for op's with Dr Lima might be interested to hear there's a specialist exercise therapy centre in southern Portugal - about 2hrs drive from Lisbon. The idea being to get in good physical shape before the op and continue the exercise therapy afterwards. I was involved in setting this place up so have no hesitation in recommending Jodi Mountjoy, who was the head of UK's centre before coming here.

Check out her web site - www.theramax.info.

If I can be of any help to any one, feel free to contact me.