7 replies to this topic

[hillarymcarter]

Who knows what it is.....
What is important is that if he doesn't want to talk about it...then don't talk about it. My husband has been getting feelings and sensations back, but he gets PISSED if anyone wants to talk about it because he doesn't want to be disappointed if it doesn't work out for him. He also doesn't want someone constantly asking him if he is regaining any feeling.
If he doesn't want to talk about it, then it's probably not a big deal and there is a reason he doesn't want to bring it up. I know it can be exciting for us..but, it can be just one more let down for him. It takes a long time to come to terms with how your body is after SCI...talking about possibilities can only make it harder.

[Joed]

I don't get as excited about new movement as much as my family and friends seem to either. I think that they may see it as a sign of significant recovery, while I view any new movement as...well, just that...movement.

I get frustrated when I cannot replicate it on command too...that can be discouraging after seeing some minimal movement and then not be able to do it later.

But it's always nice to look down and see movement...I just tend to enjoy the moment and try not to place any heavy hopes on it evolving into much more than what it is at that moment.

And the attempts are quite exhausting, extremely frustrating, oddly irritating...so I'd rather not do 'performances' for others...but people want to see for themselves and I'm not always sure what I'll be able to do from one time to another...so I tend to stay away from most discussions about it.

I suppose it's a sort of self-protection mechanism.

[carolline]

Well the sudden changes to person's life having SCI is so difficult.And it creats physical,psychological and emotional strain.There's a lot of things or anxiety that clings in his mind.Maybe he does'nt want to have a false hope.It seems for him if there's any changes for his recovery "let it be" if not "i dont care".

We have a patient now in the hospital he turned to paraplegic two weeks ago.Post-op he do'nt have sensation below waist.But now he developed his sensation to his tigh and legs.But there's no sensation to his feet,and even there's a regain feelings to his legs still he cannot move it by his own.

The body of SCI person is mysterious,we cannot say what exactly their recovery.Some doctor will pronounce "you cannot walk again" but you'll see one day that they can walk.Only GOD knows.
Let's see and wait and be patient.

Edited by carolline, 06 January 2006 - 07:58 AM.

[rooster1005]

Myla,
I was telling m husband about your post. He said that you should look into aquadic therapy. He said that when he was in Rehab another man in there was a incomplete quad and actually walked out of the facility. He spent manyhours in the pool doing his therapy there. It is worth trying and Robert said that if your hubby is be able to move or use his muscles it would be easier in the pool.
Hope this helps. I do agree with not pushing your husband as others said but any movement is great. As Robert says there is no worse failing than failing because he would not try.

[hillarymcarter]

Aquatic therapy is great for anyone who has a spinal cord injury because it is the only place where you can truely have no pressure on your body. While it is easier to move in the water, don't get the idea that he will start walking just from aquatic therapy. My biggest pet peve about any sort of therapy is that they make you believe that you will walk away from it.

[Joed]

When I attended aqua therapy, I was disappointed in what I couldn't do, the things I had higher expectations for, but at the same time I was blown out of the water (no pun intended) by what I was able to do.

While floating on my back, I could push my foot against the therapist's hand and actually propel myself backward through the water. Very, very slowly, but I was doing it. At first I didn't even believe that it was me...she had to show me that she wasn't pushing against my foot. I would never be able to make that same motion out of the water, even with powdered slide boards, I just can't overcome the friction.

I only wish I could've continued the sessions, but my HMO won't cover them. I'm thinking of getting an above-ground pool this year, but I'm somewhat anxious about having a young child around the water, and me not being able to swim as strongly as I used to.

But, yes...I agree, if you have access to aqua therapy...take advantage of it. You may surprise yourself like I did.